1. A randomised controlled trial to investigate the effectiveness of sustained photoprotective behaviour in xeroderma pigmentosum after intervention. (June 2021) Authors: Searle, Tamara; Walburn, Jessica; Norton, Sam Journal: BJPsych open Issue: Volume 7:Supplement 1(2021) Page Start: S287 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. An investigation of the predictors of photoprotection and UVR dose to the face in patients with XP: a protocol using observational mixed methods. Issue 8 (21st August 2017) Authors: Walburn, Jessica; Sarkany, Robert; Norton, Sam; Foster, Lesley; Morgan, Myfanwy; Sainsbury, Kirby; Araújo-Soares, Vera; Anderson, Rebecca; Garrood, Isabel; Heydenreich, Jakob; Sniehotta, Falko F; Vieira, Rute; Wulf, Hans Christian; Weinman, John Journal: BMJ open Issue: Volume 7:Issue 8(2017) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. Approaches to Photoprotection and Normalization in Highly Adherent Families of Children With Xeroderma Pigmentosum in the United Kingdom. (July 2020) Authors: Anderson, Rebecca; Walburn, Jessica; Morgan, Myfanwy Journal: Qualitative health research Issue: Volume 30:Number 8(2020) Page Start: 1275 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. Challenges and proposed solutions for formative research to inform systematic intervention development in rare and unstudied conditions: The case example of Xeroderma Pigmentosum. Issue 2 (19th December 2017) Authors: Sainsbury, Kirby; Walburn, Jessica; Araujo‐Soares, Vera; Weinman, John Journal: British journal of health psychology Issue: Volume 23:Issue 2(2018) Page Start: 229 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
5. Evaluation of a personalised adherence intervention to improve photoprotection in adults with Xeroderma Pigmentosum (XP): protocol for the trial of XPAND. Issue 7 (17th July 2019) Authors: Walburn, Jessica; Norton, Sam; Sarkany, Robert; Sainsbury, Kirby; Araújo-Soares, Vera; Morgan, Myfanwy; Canfield, Martha; Foster, Lesley; Heydenreich, Jakob; McCrone, Paul; Mander, Adrian; Sniehotta, Falko F; Wulf, Hans Christian; Weinman, John Journal: BMJ open Issue: Volume 9:Issue 7(2019) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
6. Experiences of stigma over the lifetime of people with xeroderma pigmentosum: A qualitative interview study in the United Kingdom. (December 2019) Authors: Anderson, Rebecca; Walburn, Jessica; Morgan, Myfanwy Journal: Journal of health psychology Issue: Volume 24:Number 14(2019) Page Start: 2031 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
7. Facial photoprotection in xeroderma pigmentosum (XP) patients: Validation of a new self‐reported questionnaire of adherence. Issue 2 (28th October 2019) Authors: Canfield, Martha; Norton, Sam; Walburn, Jessica; Morrison‐Bowen, Natalie; Sainsbury, Kirby; Araujo‐Soares, Vera; Sarkany, Robert; Weinman, John Journal: Photodermatology, photoimmunology & photomedicine Issue: Volume 36:Issue 2(2020) Page Start: 118 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
8. Forms, interactions, and responses to social support: A qualitative study of support and adherence to photoprotection amongst patients with Xeroderma Pigmentosum. Issue 1 (22nd November 2019) Authors: Walburn, Jessica; Anderson, Rebecca; Morgan, Myfanwy Journal: British journal of health psychology Issue: Volume 25:Issue 1(2020) Page Start: 89 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
9. Identifying the psychosocial predictors of ultraviolet exposure to the face in patients with xeroderma pigmentosum: a study of the behavioural factors affecting clinical outcomes in this genetic disease. Issue 11 (7th April 2022) Authors: Sarkany, Robert; Norton, Sam; Canfield, Martha; Morgan, Myfanwy; Foster, Lesley; Sainsbury, Kirby; Araujo-Soares, Vera; Wulf, Hans Christian; Weinman, John; Walburn, Jessica Journal: Journal of medical genetics Issue: Volume 59:Issue 11(2022) Page Start: 1095 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
10. Improving photoprotection in adults with xeroderma pigmentosum: personalisation and tailoring in the 'XPAND' intervention. Issue 1 (1st January 2020) Authors: Sainsbury, Kirby; Walburn, Jessica; Foster, Lesley; Morgan, Myfanwy; Sarkany, Robert; Weinman, John; Araujo-Soares, Vera Journal: Health psychology and behavioral medicine Issue: Volume 8:Issue 1(2020) Page Start: 543 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗