1. Attitudes of research participants and the general public towards genomic data sharing: a systematic literature review. (November 2014) Authors: Shabani, Mahsa; Bezuidenhout, Louise; Borry, Pascal Journal: Expert review of molecular diagnostics Issue: Volume 14:Number 8(2014) Page Start: 1053 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. Blockchain-based platforms for genomic data sharing: a de-centralized approach in response to the governance problems?. (28th November 2018) Authors: Shabani, Mahsa Journal: Journal of the American Medical Informatics Association Issue: Volume 26:Number 1(2019) Page Start: 76 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. Building a better mobile app marketplace: A legal and governance toolkit for app mediated genomics research. Issue 46 (September 2022) Authors: McKibbin, Kyle J; Shabani, Mahsa Journal: Computer law & security review Issue: Issue 46(2022) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. Data sharing platforms and the academic evaluation system. (12th July 2020) Authors: Devriendt, Thijs; Shabani, Mahsa; Borry, Pascal Journal: EMBO reports Issue: Volume 21:Number 8(2020) Page Start: n/a Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
5. Forensic Epigenetic Age Estimation and Beyond: Ethical and Legal Considerations. Issue 7 (July 2018) Authors: Shabani, Mahsa; Borry, Pascal; Smeers, Inge; Bekaert, Bram Journal: Trends in genetics Issue: Volume 34:Issue 7(2018) Page Start: 489 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
6. From the principles of genomic data sharing to the practices of data access committees. Issue 5 (10th March 2015) Authors: Shabani, Mahsa; Knoppers, Bartha Maria; Borry, Pascal Journal: EMBO molecular medicine Issue: Volume 7:Issue 5(2015:May) Page Start: 507 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
7. Is There a Right Time to Know? The Right Not to Know and Genetic Testing in Children. Issue 1 (28th April 2014) Authors: Borry, Pascal; Shabani, Mahsa; Howard, Heidi Carmen Journal: Journal of law, medicine & ethics Issue: Volume 42:Issue 1(2014) Page Start: 19 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
8. Is There a Right Time to Know?: The Right Not to Know and Genetic Testing in Children. Issue 1 (2014) Authors: Borry, Pascal; Shabani, Mahsa; Howard, Heidi Carmen Journal: Journal of law, medicine & ethics Issue: Volume 42:Issue 1(2014) Page Start: 19 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
9. Policies to regulate data sharing of cohorts via data infrastructures: An interview study with funding agencies. (December 2022) Authors: Devriendt, Thijs; Shabani, Mahsa; Borry, Pascal Journal: International journal of medical informatics Issue: Volume 168(2022) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
10. Public involvement in the governance of population-level biomedical research: unresolved questions and future directions. Issue 7 (6th October 2020) Authors: Erikainen, Sonja; Friesen, Phoebe; Rand, Leah; Jongsma, Karin; Dunn, Michael; Sorbie, Annie; McCoy, Matthew; Bell, Jessica; Burgess, Michael; Chen, Haidan; Chico, Vicky; Cunningham-Burley, Sarah; Darbyshire, Julie; Dawson, Rebecca; Evans, Andrew; Fahy, Nick; Finlay, Teresa; Frith, Lucy; Goldenber... Journal: Journal of medical ethics Issue: Volume 47:Issue 7(2021) Page Start: 522 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗