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1. 8th European Conference on Rare Diseases & Orphan Products (ECRD 2016). Issue 1 (November 2016)

6. Determining the value of medical technologies to treat ultra-rare disorders: a consensus statement. Issue 1 (1st January 2016)

8. Evaluating discrete choice experiment willingness to pay [DCE-WTP] analysis and relative social willingness to pay [RS-WTP] analysis in a health technology assessment of a treatment for an ultra-rare childhood disease [CLN2]. (19th May 2022)