1. 223 Patient organisation-led initiatives can play an important role in raising awareness about Raynaud's phenomenon and encourage earlier healthcare utilisation for high risk groups. (12th April 2019) Authors: Hughes, Michael; Baker, Amy; Farrington, Sue; Pauling, John Journal: Rheumatology Issue: Volume 58(2019)Supplement 3 Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. 267. PATIENT PERCEPTIONS OF HEALTH RELATED QUALITY OF LIFE RELATED TO GIANT CELL ARTERITIS AND ITS TREATMENT: AN INTERNATIONAL QUALITATIVE STUDY. (29th March 2019) Authors: Robson, Joanna; Almeida, Celia; Dawson, Jill; Emma, Dures; Bromhead, Alison; Mackie, Sarah; Hoon, Elizabeth; Davis, Courtney; Greenwood, Rosemary; Luqmani, Raashid; Dasgupta, Bhaskar; Guly, Catherine; Pauling, John; Watts, Richard; Hill, Catherine Journal: Rheumatology Issue: Volume 58(2019)Supplement 2 Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. A comprehensive framework for navigating patient care in systemic sclerosis: A global response to the need for improving the practice of diagnostic and preventive strategies in SSc. Issue 3 (September 2021) Authors: Saketkoo, Lesley Ann; Frech, Tracy; Varjú, Cecília; Domsic, Robyn; Farrell, Jessica; Gordon, Jessica K.; Mihai, Carina; Sandorfi, Nora; Shapiro, Lee; Poole, Janet; Volkmann, Elizabeth R.; Lammi, Monika; McAnally, Kendra; Alexanderson, Helene; Pettersson, Henrik; Hant, Faye; Kuwana, Masataka; Shah... Journal: Best practice & research Issue: Volume 35:Issue 3(2021) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. I113 Vasculopathy: better assessment of Raynaud's phenomenon and digital ulcers in scleroderma. (12th April 2019) Authors: Pauling, John Journal: Rheumatology Issue: Volume 58(2019)Supplement 3 Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
5. Management of systemic sclerosis: British Society for Rheumatology guideline scope. Issue 1 (14th March 2023) Authors: Denton, Christopher P; De Lorenzis, Enrico; Roblin, Elen; Goldman, Nina; Alcacer-Pitarch, Begonya; Blamont, Emma; Buch, Maya; Carulli, Maresa; Cotton, Caroline; del Galdo, Francesco; Derrett-Smith, Emma; Douglas, Karen; Farrington, Sue; Fligelstone, Kim; Gompels, Luke; Griffiths, Bridget; Herrick... Journal: Rheumatology advances in practice Issue: Volume 7:Issue 1(2023) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
6. O14 Patients with systemic sclerosis can identify with distinct symptom patterns of Raynaud's phenomenon that are associated with different physician and patient-reported assessments of disease severity. (25th April 2018) Authors: Pauling, John; Reilly, Elizabeth; Frech, Tracey Journal: Rheumatology Issue: Volume 57(2018)Supplement 3 Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
7. O16 A study examining the reliability of digital ulcer definitions as proposed by the UK Scleroderma Study Group: challenges and insights for future clinical trial design. (25th April 2018) Authors: Hughes, Michael; Bhushan, Monica; Chakravarty, Kuntal; Denton, Christopher P; Dubey, Shirish; Guiducci, Serena; Muir, Lindsay; Ong, Voon; Parker, Louise; Pauling, John; Prabu, Athiveeraramapandian; Ravenscroft, Janet; Roberts, Christopher; Rogers, Christine; Tracey, Andrew; Herrick, Ariane L Journal: Rheumatology Issue: Volume 57(2018)Supplement 3 Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
8. OA20 Pneumatosis intestinalis with spontaneous pneumoperitoneum in a patient with systemic sclerosis-myositis overlap syndrome: a case report and review of the literature. (28th September 2022) Authors: Lim, Kian Wah; Knights, Sally; Pauling, John; Gotto, James Journal: Rheumatology advances in practice Issue: Volume 6(2022)Supplement 1 Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
9. Patient perceptions of health-related quality of life in giant cell arteritis: international development of a disease-specific patient-reported outcome measure. (2nd February 2021) Authors: Robson, Joanna C; Almeida, Celia; Dawson, Jill; Bromhead, Alison; Dures, Emma; Guly, Catherine; Hoon, Elizabeth; Mackie, Sarah; Ndosi, Mwidimi; Pauling, John; Hill, Catherine Journal: Rheumatology Issue: Volume 60:Number 10(2021) Page Start: 4671 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
10. THU0642 EULAR POINTS TO CONSIDER FOR THE DEVELOPMENT, EVALUATION AND IMPLEMENTATION OF MOBILE HEALTH APPLICATIONS FOR SELF-MANAGEMENT IN PATIENTS WITH RHEUMATIC AND MUSCULOSKELETAL DISEASES. (June 2019) Authors: Najm, Aurelie; Nikiphorou, Elena; Kostine, Marie; Richez, Christophe; Pauling, John; Finckh, Axel; Ritschl, Valentin; Prior, Yeliz; Balazova, Petra; Stones, Simon; Szekanecz, Zoltán; Iagnocco, Annamaria; Ramiro, Sofia; Sivera, Francisca; Dougados, Maxime; Carmona, Loreto; Burmester, Gerd Rüdiger;... Journal: Annals of the rheumatic diseases Issue: Volume 78(2019)Supplement 2 Page Start: 616 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗