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4. The Canadian Neuromuscular Disease Registry: Connecting patients to national and international research opportunities. Issue 1 (8th December 2017)

8. A National Spinal Muscular Atrophy Registry for Real-World Evidence. (4th November 2020)

9. Telling My Tale: Reflections on the Process of Visual Storytelling for Children and Youth Living With Cystic Fibrosis and Muscular Dystrophy in Canada. (21st January 2020)