1. Needs-based quality of life in adults dependent on home parenteral nutrition. Issue 3 (June 2019) Authors: Burden, Sorrel T.; Jones, Debra J.; Gittins, Matthew; Ablett, Joanne; Taylor, Michael; Mountford, Christopher; Tyrrell-Price, Jonathan; Donnellan, Clare; Leslie, Fiona; Bowling, Tim; Gabe, Simon; Rahman, Farooq; McKenna, Stephen P.; Wilburn, Jeanette; Heaney, Alice; Allan, Philip; Lal, Simon Journal: Clinical nutrition Issue: Volume 38:Issue 3(2019) Page Start: 1433 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. Measurement of patient-reported outcomes. 2: Are current measures failing us?. (3rd June 2019) Authors: McKenna, Stephen P.; Heaney, Alice; Wilburn, Jeanette Journal: Journal of medical economics Issue: Volume 22:Number 6(2019) Page Start: 523 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. Measurement of patient-reported outcomes. 1: The search for the Holy Grail. (3rd June 2019) Authors: McKenna, Stephen P.; Heaney, Alice; Wilburn, Jeanette; Stenner, A. Jackson Journal: Journal of medical economics Issue: Volume 22:Number 6(2019) Page Start: 516 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ), a patient-centric outcome measure for Home Parenteral Nutrition. Issue 3 (June 2018) Authors: Wilburn, Jeanette; McKenna, Stephen P.; Heaney, Alice; Rouse, Matthew; Taylor, Michael; Culkin, Alison; Gabe, Simon; Burden, Sorrel; Lal, Simon Journal: Clinical nutrition Issue: Volume 37:Issue 3(2018) Page Start: 978 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
5. A qualitative study of the impact of plexiform neurofibromas on need fulfilment in adults with neurofibromatosis type 1. (February 2019) Authors: Heaney, Alice; Wilburn, Jeanette; Langmead, Shannon; Blakeley, Jaishri; Huson, Susan; Jim, Carly; McKenna, Stephen P Journal: SAGE open medicine Issue: Volume 7(2019) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
6. Composite outcome measurement in clinical research: the triumph of illusion over reality?. (2nd October 2020) Authors: McKenna, Stephen P.; Heaney, Alice Journal: Journal of medical economics Issue: Volume 23:Number 10(2020) Page Start: 1196 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
7. The development of the PlexiQoL: A patient‐reported outcome measure for adults with neurofibromatosis type 1‐associated plexiform neurofibromas. Issue 12 (21st October 2020) Authors: Heaney, Alice; Wilburn, Jeanette; Rouse, Matthew; Langmead, Shannon; Blakeley, Jaishri O.; Huson, Susan; McKenna, Stephen P. Journal: Molecular genetics & genomic medicine Issue: Volume 8:Issue 12(2020) Page Start: n/a Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
8. International Development of the Alzheimer's Patient Partners Life Impact Questionnaire (APPLIQue). (27th August 2020) Authors: McKenna, Stephen P.; Rouse, Matthew; Heaney, Alice; Hagell, Peter Journal: American journal of Alzheimer's disease & other dementias Issue: Volume 35(2020) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
9. Setting and maintaining standards for patient-reported outcome measures: can we rely on the COSMIN checklists?. (1st January 2021) Authors: McKenna, Stephen P.; Heaney, Alice Journal: Journal of medical economics Issue: Volume 24:Number 1(2021) Page Start: 502 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
10. Setting and maintaining standards for patient-reported outcome measures: can we rely on the COSMIN checklists?. (1st January 2021) Authors: McKenna, Stephen P.; Heaney, Alice Journal: Journal of medical economics Issue: Volume 24:Number 1(2021) Page Start: 502 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗