1. Development of a condition‐specific patient‐reported outcome measure for measuring symptoms and appearance in vascular malformations: the OVAMA questionnaire. (14th June 2021) Authors: Lokhorst, M.M.; Horbach, S.E.R.; Young‐Afat, D.A.; Stor, M.L.E.; Haverman, L.; Spuls, P.I.; van der Horst, C.M.A.M. Journal: British journal of dermatology Issue: Volume 185:Number 4(2021) Page Start: 797 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. Development of a condition‐specific patient‐reported outcome measure for measuring symptoms and appearance in vascular malformations: the OVAMA questionnaire. (1st October 2021) Authors: Lokhorst, M.M.; Horbach, S.E.R.; Young‐Afat, D.A.; Stor, M.L.E.; Haverman, L.; Spuls, P.I.; van der Horst, C.M.A.M. Journal: British journal of dermatology Issue: Volume 185:Number 4(2021) Page Start: 797 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. Health-related quality of life of perinatally HIV-infected young people: a longitudinal study. Issue 2 (1st February 2022) Authors: ter Haar, A. M.; Van den Hof, M.; Scherpbier, H. J.; Oostrom, K. J.; Haverman, L.; Pajkrt, D. Journal: AIDS care Issue: Volume 34:Issue 2(2022) Page Start: 263 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. Health‐related quality of life questionnaires in individuals with haemophilia: a systematic review of their measurement properties. Issue 4 (21st April 2017) Authors: Limperg, P.F.; Terwee, C.B.; Young, N.L.; Price, V.E.; Gouw, S.C.; Peters, M.; Grootenhuis, M.A.; Blanchette, V.; Haverman, L. Journal: Haemophilia Issue: Volume 23:Issue 4(2017) Page Start: 497 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
5. Male gender, school attendance and sports participation are positively associated with health‐related quality of life in children and adolescents with congenital bleeding disorders. Issue 3 (8th February 2018) Authors: Limperg, P. F.; Joosten, M. M. H.; Fijnvandraat, K.; Peters, M.; Grootenhuis, M. A.; Haverman, L. Journal: Haemophilia Issue: Volume 24:Issue 3(2018) Page Start: 395 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
6. Measuring anxiety and depression in young adult men with haemophilia using PROMIS. Issue 3 (19th March 2022) Authors: Heesterbeek, M.R.; Luijten, M.A.J.; Gouw, S.C.; Limperg, P.F.; Fijnvandraat, K.; Coppens, M.; Kruip, M.J.H.A.; Eikenboom, J.; Grootenhuis, M.A.; Flens, G.; Terwee, C.B.; Peters, M.; Haverman, L. Journal: Haemophilia Issue: Volume 28:Issue 3(2022) Page Start: e79 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
7. Patient reported outcomes in pediatric oncology practice: Suggestions for future usage by parents and pediatric oncologists. Issue 9 (20th March 2014) Authors: Schepers, S.A.; Engelen, V.E.; Haverman, L.; Caron, H.N.; Hoogerbrugge, P.M.; Kaspers, G.J.L.; Egeler, R.M.; Grootenhuis, M.A. Journal: Pediatric blood & cancer Issue: Volume 61:Issue 9(2014:Sep.) Page Start: 1707 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
8. PB2227: HEALTH-RELATED QUALITY OF LIFE OVER TIME IN PEDIATRIC PATIENTS WITH SICKLE CELL DISEASE ADMITTED FOR VASO-OCCLUSIVE CRISIS. (23rd June 2022) Authors: Vuong, C.; Moussa, I.; Haverman, L.; Rettenbacher, E.; Heijboer, H.; Twisk, J.; Fijnvandraat, K.; de Groot-Eckhardt, C. L. Journal: HemaSphere Issue: Volume 6(2022)Supplement 3 Page Start: 2097 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
9. Psychosocial care for children with haemophilia and their parents in the Netherlands. Issue 3 (21st March 2017) Authors: Limperg, P.F.; Haverman, L.; Beijlevelt, M.; van der Pot, M.; Zaal, G.; de Boer, W.A.; Fijnvandraat, K.; Peters, M.; Grootenhuis, M. A. Journal: Haemophilia Issue: Volume 23:Issue 3(2017) Page Start: 362 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
10. Psychosocial functioning of mothers of boys with haemophilia. (13th October 2015) Authors: Limperg, P. F.; Haverman, L.; Peters, M.; Grootenhuis, M. A. Journal: Haemophilia Issue: Volume 22:Number 1(2016:Jan.) Page Start: e57 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗