1. AB0655 SCLERONET®: A PATIENT-CENTERED MULTIDISCIPLINARY APPROACH TO SYSTEMIC SCLEROSIS. (June 2019) Authors: Galetti, Ilaria; Bonini, Lauretta Journal: Annals of the rheumatic diseases Issue: Volume 78(2019)Supplement 2 Page Start: 1788 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. Antiphospholipid syndrome: state of the art on clinical practice guidelines. (18th October 2018) Authors: Limper, Marteen; Scirè, Carlo Alberto; Talarico, Rosaria; Amoura, Zahir; Avcin, Tadej; Basile, Martina; Burmester, Gerd; Carli, Linda; Cervera, Ricard; Costedoat-Chalumeau, Nathalie; Doria, Andrea; Dörner, Thomas; Fonseca, João Eurico; Galetti, Ilaria; Hachulla, Eric; Launay, David; Lourenco, Fil... Journal: RMD open Issue: Volume 4(2018)Supplement 1 Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. Clinical practice guidelines adherence, knowledge and awareness in rare and complex connective tissue diseases across Europe: results from the first ERN ReCONNET survey. Issue 2 (5th September 2020) Authors: Talarico, Rosaria; Marinello, Diana; Bombardieri, Stefano; Burmester, Gerd; Fonseca, Joao; Frank, Charissa; Galetti, Ilaria; Hachulla, Eric; Houssiau, Frederic; Mueller-Ladner, Ulf; Schneider, Matthias; Smith, Vanessa; Turchetti, Giuseppe; van Laar, Jacob M; Vieira, Ana; Cutolo, Maurizio; Mosca, ... Journal: RMD open Issue: Volume 6:Issue 2(2020) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. Collaboration between patient organisations and a clinical research sponsor in a rare disease condition: learnings from a community advisory board and best practice for future collaborations. Issue 12 (16th December 2020) Authors: Roennow, Annelise; Sauvé, Maureen; Welling, Joep; Riggs, Robert J; Kennedy, Ann Tyrrell; Galetti, Ilaria; Brown, Edith; Leite, Catarina; Gonzalez, Alex; Portales Guiraud, Alexandra Paula; Houÿez, François; Camp, Rob; Gilbert, Annie; Gahlemann, Martina; Moros, Lizette; Luna Flores, Jose Luis; Schm... Journal: BMJ open Issue: Volume 10:Issue 12(2020) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
5. Expert opinion and patients' in-depth interviews on the impact of pulmonary complications in systemic sclerosis. (10th November 2021) Authors: Caminati, Antonella; Vigone, Barbara; Cozzaglio, Sergio; De Nigris, Paola; Galetti, Ilaria; Nunzio, Sara di; Verzeletti, Viviana; Cighetti, Jennifer; Garbagnati, Carla; Paleari, Laura; Tabaglio, Erminio; Pirri, Salvatore Journal: Current medical research and opinion Issue: Volume 37(2021)supplement 2 Page Start: 17 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
6. Exploring patient education unmet needs for rare and complex connective tissue and musculoskeletal diseases: A survey of health care providers' and patients' expectations in Europe. (June 2022) Authors: Farhat, Meryem-Maud; Cornet, Alain; Frank, Charissa; Galetti, Ilaria; Grunert, Juergen; Guimarães, Vera; Vieira, Ana; Hachulla, Eric Journal: Chronic illness Issue: Volume 18:Number 2(2022) Page Start: 370 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
7. Exploring patient's experience and unmet needs on pregnancy and family planning in rare and complex connective tissue diseases: a narrative medicine approach. Issue 2 (12th December 2022) Authors: Marinello, Diana; Zucchi, Dina; Palla, Ilaria; Aguilera, Silvia; Galetti, Ilaria; Holmner, Monica; Sandulescu, Silvia; Scarle, Lucy; Tremarias, Dalila; Bouillot, Coralie; Cattaneo, Laura; Gaglioti, Andrea; Ticciati, Simone; Brucato, Antonio; Khamashta, Munther; Shoenfeld, Yehuda; Tincani, Angela;... Journal: RMD open Issue: Volume 8:Issue 2(2022) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
8. FRI0607 IDENTIFICATION OF UNMET NEEDS RELATED TO RARE AND COMPLEX CONNECTIVE TISSUE AND MUSCULOSKELETAL DISEASES (RCTDS) ACROSS EU: THE EXPERIENCE OF THE ERN RECONNET. (June 2019) Authors: Marinello, Diana; Ticciati, Simone; Talarico, Rosaria; Alexander, Tobias; Arnaud, Laurent; Cavagna, Lorenzo; Beretta, Lorenzo; Chaigne, Benjamin; Cornet, Alain; Costedoat-Chalumeau, Nathalie; Fischer-Betz, Rebecca; Frank, Charissa Hermine; Galetti, Ilaria; Grunert, Jürgen; Guimaraes, Vera; Iaccar... Journal: Annals of the rheumatic diseases Issue: Volume 78(2019)Supplement 2 Page Start: 999 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
9. How do systemic sclerosis manifestations influence patients' lives? Results from a survey on patients and caregivers. (10th November 2021) Authors: Galetti, Ilaria; Nunzio, Sara di; Brogelli, Laura; Mirisola, Valentina; Garbagnati, Carla Journal: Current medical research and opinion Issue: Volume 37(2021)supplement 2 Page Start: 5 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
10. Idiopathic inflammatory myopathies: state of the art on clinical practice guidelines. (26th February 2019) Authors: Meyer, Alain; Scirè, Carlo Alberto; Talarico, Rosaria; Alexander, Tobias; Amoura, Zahir; Avcin, Tadej; Barsotti, Simone; Beretta, Lorenzo; Blagojevic, Jelena; Burmester, Gerd; Cavazzana, Ilaria; Cherrin, Patrick; Damian, Laura; Doria, Andrea; Fonseca, João Eurico; Furini, Federica; Galetti, Ilari... Journal: RMD open Issue: Volume 4(2018)Supplement 1 Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗