1. Evaluation of the sexual health in people living with hemophilia. Issue 6 (19th September 2021) Authors: Germini, Federico; Chai‐Adisaksopha, Chatree; Pete, Drashti; Curtis, Randall; Frick, Neil; Nichol, Michael B.; Noone, Declan; O'Mahony, Brian; Page, David; Stonebraker, Jeffrey S.; Thabane, Lehana; Crowther, Mark A; Skinner, Mark W; Iorio, Alfonso Journal: Haemophilia Issue: Volume 27:Issue 6(2021) Page Start: 993 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study. Issue 3 (12th March 2019) Authors: Chai‐Adisaksopha, Chatree; Skinner, Mark W.; Curtis, Randall; Frick, Neil; Nichol, Michael B.; Noone, Declan; O'Mahony, Brian; Page, David; Stonebraker, Jeffrey; Thabane, Lehana; Crowther, Mark A.; Iorio, Alfonso Journal: Haemophilia Issue: Volume 25:Issue 3(2019) Page Start: 365 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. Impact of hemophilia B on quality of life in affected men, women, and caregivers—Assessment of patient‐reported outcomes in the B‐HERO‐S study. (11th April 2018) Authors: Buckner, Tyler W.; Witkop, Michelle; Guelcher, Christine; Sidonio, Robert; Kessler, Craig M.; Clark, David B.; Owens, Wendy; Frick, Neil; Iyer, Neeraj N.; Cooper, David L. Journal: European journal of haematology Issue: Volume 100:Number 6(2018) Page Start: 592 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. Impact of mild to severe hemophilia on education and work by US men, women, and caregivers of children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B‐HERO‐S) study. (April 2017) Authors: Cutter, Susan; Molter, Don; Dunn, Spencer; Hunter, Susan; Peltier, Skye; Haugstad, Kimberly; Frick, Neil; Holot, Natalia; Cooper, David L. Journal: European journal of haematology Issue: Volume 98(2017)Supplement 86 Page Start: 18 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
5. Impact of mild to severe hemophilia on engagement in recreational activities by US men, women, and children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B‐HERO‐S) study. (April 2017) Authors: Baumann, Kimberly; Hernandez, Grace; Witkop, Michelle; Peltier, Skye; Dunn, Spencer; Cutter, Susan; Frick, Neil; Haugstad, Kimberly; Guelcher, Christine; Frey, Mary Jane; Rotellini, Dawn; Clark, David B.; Iyer, Neeraj N.; Cooper, David L. Journal: European journal of haematology Issue: Volume 98(2017)Supplement 86 Page Start: 25 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
6. Management of US men, women, and children with hemophilia and methods and demographics of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B‐HERO‐S) study. (April 2017) Authors: Buckner, Tyler W.; Witkop, Michelle; Guelcher, Christine; Frey, Mary Jane; Hunter, Susan; Peltier, Skye; Recht, Michael; Walsh, Christopher; Kessler, Craig M.; Owens, Wendy; Clark, David B.; Frick, Neil; Rice, Michelle; Iyer, Neeraj N.; Holot, Natalia; Cooper, David L.; Sidonio, Robert Journal: European journal of haematology Issue: Volume 98(2017)Supplement 86 Page Start: 5 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
7. Non‐severe haemophilia: Is it benign? – Insights from the PROBE study. (1st September 2020) Authors: Chai‐Adisaksopha, Chatree; Noone, Declan; Curtis, Randall; Frick, Neil; Nichol, Michael B.; Germini, Federico; O'Mahony, Brian; Page, David; Stonebraker, Jeffrey S.; Skinner, Mark W.; Iorio, Alfonso Journal: Haemophilia Issue: Volume 27(2021)Supplement 1 Page Start: 17 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
8. Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire. Issue 8 (8th August 2018) Authors: Chai-Adisaksopha, Chatree; Skinner, Mark W; Curtis, Randall; Frick, Neil; Nichol, Michael B; Noone, Declan; O'Mahony, Brian; Page, David; Stonebraker, Jeffrey; Thabane, Lehana; Crowther, Mark; Iorio, Alfonso Journal: BMJ open Issue: Volume 8:Issue 8(2018) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
9. Test‐retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains. Issue 1 (6th December 2018) Authors: Chai‐Adisaksopha, Chatree; Skinner, Mark W.; Curtis, Randall; Frick, Neil; Nichol, Michael B.; Noone, Declan; O'Mahony, Brian; Page, David; Stonebraker, Jeffrey; Thabane, Lehana; Crowther, Mark A.; Iorio, Alfonso Journal: Haemophilia Issue: Volume 25:Issue 1(2019) Page Start: 75 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
10. Treatment outcomes, quality of life, and impact of hemophilia on young adults (aged 18–30 years) with hemophilia. (December 2015) Authors: Witkop, Michelle; Guelcher, Christine; Forsyth, Angela; Hawk, Sarah; Curtis, Randall; Kelley, Laureen; Frick, Neil; Rice, Michelle; Rosu, Gabriela; Cooper, David L. Journal: American journal of hematology Issue: Volume 90(2015)Supplement 2 Page Start: S3 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗