1. A patient‐focused survey to assess the effects of the COVID‐19 pandemic and social guidelines on people with muscular dystrophy. Issue 3 (25th June 2021) Authors: Eichinger, Katy; Lewis, Leann; Dilek, Nuran; Higgs, Kiley; Walker, Michaela; Palmer, David; Cooley, John M.; Johnson, Nicholas; Tawil, Rabi; Statland, Jeffrey Journal: Muscle & nerve Issue: Volume 64:Issue 3(2021) Page Start: 321 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. Assessing perspectives of disease burden and clinically meaningful changes using the Spinal Muscular Atrophy Health Index in adolescents and young adults. Issue 3 (19th June 2022) Authors: Mazzella, Allison; Cruz, Rosángel; Belter, Lisa; Curry, Mary; Dilek, Nuran; Zizzi, Christine; Heatwole, Chad; Jarecki, Jill Journal: Muscle & nerve Issue: Volume 66:Issue 3(2022) Page Start: 276 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. Correction to: P047 The Crohn's Disease-Health Index (CD-HI): Development and Validation of a Novel, Disease-Specific Patient-Reported Outcome Measure for Clinical Trials. (9th May 2022) Authors: Seabury, Jamison; Weinstein, Jennifer; Rosero, Spencer; Varma, Anika; Wagner, Ellen; Zizzi, Christine; Dilek, Nuran; McDermott, Michael; Kaat, Aaron; Saubermann, Lawrence; Temple, Larissa; Rogoff, Scott; Heatwole, Chad Journal: American journal of gastroenterology Issue: Volume 117:Number 5(2022) Page Start: 817 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. DEVELOPMENT AND VALIDATION OF A PATIENT-REPORTED OUTCOME MEASURE FOR CROHN'S DISEASE: THE CROHN'S DISEASE-HEALTH INDEX (CD-HI), A FULLY VALIDATED TOOL TO BOLSTER CLINICAL TRIAL AND RESEARCH INFRASTRUCTURE. (26th January 2023) Authors: Rosero, Spencer; Varma, Anika; Seabury, Jamison; Weinstein, Jennifer; Wagner, Ellen; Zizzi, Christine; Engebrecht, Charlotte; Kaat, Aaron; Luebbe, Elizabeth; Dilek, Nuran; Heatwole, John; Saubermann, Lawrence; Temple, Larissa; Rogoff, Scott; Heatwole, Chad Journal: Inflammatory bowel diseases Issue: Volume 29(2023)Supplement 1 Page Start: S74 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
5. DEVELOPMENT AND VALIDATION OF THE CROHN'S DISEASE-HEALTH INDEX (CD-HI), A CLINICALLY-RELEVANT, DISEASE-SPECIFIC PATIENT-REPORTED OUTCOME MEASURE. (22nd January 2022) Authors: Seabury, Jamison; Weinstein, Jennifer; Rosero, Spencer; Varma, Anika; Wagner, Ellen; Zizzi, Christine; Dilek, Nuran; McDermott, Michael; Kaat, Aaron; Saubermann, Lawrence; Temple, Larissa; Rogoff, Scott; Heatwole, Chad; Rose, Zach Journal: Inflammatory bowel diseases Issue: Volume 28(2022)Supplement 1 Page Start: S73 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
6. Electrical impedance myography in facioscapulohumeral muscular dystrophy. Issue 4 (25th May 2016) Authors: Statland, Jeffrey M.; Heatwole, Chad; Eichinger, Katy; Dilek, Nuran; Martens, William B.; Tawil, Rabi Journal: Muscle & nerve Issue: Volume 54:Issue 4(2016) Page Start: 696 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
7. Electrical impedance myography in facioscapulohumeral muscular dystrophy: A 1‐year follow‐up study. Issue 2 (17th April 2018) Authors: Mul, Karlien; Heatwole, Chad; Eichinger, Katy; Dilek, Nuran; Martens, William B.; Van Engelen, Baziel G. M.; Tawil, Rabi; Statland, Jeffrey M. Journal: Muscle & nerve Issue: Volume 58:Issue 2(2018) Page Start: 213 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
8. Facioscapulohumeral muscular dystrophy functional composite outcome measure. Issue 1 (20th February 2018) Authors: Eichinger, Katy; Heatwole, Chad; Iyadurai, Stanley; King, Wendy; Baker, Lindsay; Heininger, Susanne; Bartlett, Amy; Dilek, Nuran; Martens, William B.; Mcdermott, Michael; Kissel, John T.; Tawil, Rabi; Statland, Jeffrey M. Journal: Muscle & nerve Issue: Volume 58:Issue 1(2018) Page Start: 72 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
9. Mexiletine in Myotonic Dystrophy Type 1: A Randomized, Double-Blind, Placebo-Controlled Trial. (12th January 2021) Authors: Heatwole, Chad; Luebbe, Elizabeth; Rosero, Spencer; Eichinger, Katy; Martens, William; Hilbert, James; Dekdebrun, Jeanne; Dilek, Nuran; Zizzi, Christine; Johnson, Nicholas; Puwanant, Araya; Tawil, Rabi; Schifitto, Giovanni; Beck, Christopher A.; Richeson, J. Franklin; Zareba, Wojciech; Thornton, ... Journal: Neurology Issue: Volume 96:Number 2(2021) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
10. Myotonic dystrophy health index: Correlations with clinical tests and patient function. Issue 2 (29th December 2015) Authors: Heatwole, Chad; Bode, Rita; Johnson, Nicholas E.; Dekdebrun, Jeanne; Dilek, Nuran; Eichinger, Katy; Hilbert, James E.; Logigian, Eric; Luebbe, Elizabeth; Martens, William; Mcdermott, Michael P.; Pandya, Shree; Puwanant, Araya; Rothrock, Nan; Thornton, Charles; Vickrey, Barbara G.; Victorson, Davi... Journal: Muscle & nerve Issue: Volume 53:Issue 2(2016) Page Start: 183 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗