1. Association of factor expression levels with health-related quality of life and direct medical costs for people with haemophilia B. (31st December 2022) Authors: Burke, Tom; Shaikh, Anum; Ali, Talaha M.; Li, Nanxin; Curtis, Randall; Garcia Diego, Daniel-Anibal; Recht, Michael; Sannie, Thomas; Skinner, Mark; O'Hara, Jamie Journal: Journal of medical economics Issue: Volume 25:Number 1(2022) Page Start: 386 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. Challenges in transition to adulthood for young adult patients with hemophilia: Quantifying the psychosocial issues and developing solutions. (December 2015) Authors: Witkop, Michelle; Guelcher, Christine; Forsyth, Angela; Quon, Doris; Hawk, Sarah; Curtis, Randall; Cutter, Susan; Molter, Don; Cooper, David L. Journal: American journal of hematology Issue: Volume 90(2015)Supplement 2 Page Start: S1 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. Evaluation of the sexual health in people living with hemophilia. Issue 6 (19th September 2021) Authors: Germini, Federico; Chai‐Adisaksopha, Chatree; Pete, Drashti; Curtis, Randall; Frick, Neil; Nichol, Michael B.; Noone, Declan; O'Mahony, Brian; Page, David; Stonebraker, Jeffrey S.; Thabane, Lehana; Crowther, Mark A; Skinner, Mark W; Iorio, Alfonso Journal: Haemophilia Issue: Volume 27:Issue 6(2021) Page Start: 993 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study. Issue 3 (12th March 2019) Authors: Chai‐Adisaksopha, Chatree; Skinner, Mark W.; Curtis, Randall; Frick, Neil; Nichol, Michael B.; Noone, Declan; O'Mahony, Brian; Page, David; Stonebraker, Jeffrey; Thabane, Lehana; Crowther, Mark A.; Iorio, Alfonso Journal: Haemophilia Issue: Volume 25:Issue 3(2019) Page Start: 365 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
5. Humanistic burden of problem joints for children and adults with haemophilia. Issue 2 (27th December 2022) Authors: Burke, Tom; Rodriguez‐Santana, Idaira; Chowdary, Pratima; Curtis, Randall; Khair, Kate; Laffan, Michael; Mclaughlin, Paul; Noone, Declan; O'Mahony, Brian; Pasi, John; Skinner, Mark; O'Hara, Jamie Journal: Haemophilia Issue: Volume 29:Issue 2(2023) Page Start: 608 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
6. Non‐severe haemophilia: Is it benign? – Insights from the PROBE study. (1st September 2020) Authors: Chai‐Adisaksopha, Chatree; Noone, Declan; Curtis, Randall; Frick, Neil; Nichol, Michael B.; Germini, Federico; O'Mahony, Brian; Page, David; Stonebraker, Jeffrey S.; Skinner, Mark W.; Iorio, Alfonso Journal: Haemophilia Issue: Volume 27(2021)Supplement 1 Page Start: 17 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
7. Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment. Issue 5 (26th July 2021) Authors: Witkop, Michelle; Morgan, George; O'Hara, Jamie; Recht, Michael; Buckner, Tyler W.; Nugent, Diane; Curtis, Randall; O'Mahony, Brian; Skinner, Mark W.; Mulhern, Brendan; Cawson, Matthew; Ali, Talaha M.; Sawyer, Eileen K.; Li, Nanxin Journal: Haemophilia Issue: Volume 27:Issue 5(2021) Page Start: 769 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
8. Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire. Issue 8 (8th August 2018) Authors: Chai-Adisaksopha, Chatree; Skinner, Mark W; Curtis, Randall; Frick, Neil; Nichol, Michael B; Noone, Declan; O'Mahony, Brian; Page, David; Stonebraker, Jeffrey; Thabane, Lehana; Crowther, Mark; Iorio, Alfonso Journal: BMJ open Issue: Volume 8:Issue 8(2018) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
9. Test‐retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains. Issue 1 (6th December 2018) Authors: Chai‐Adisaksopha, Chatree; Skinner, Mark W.; Curtis, Randall; Frick, Neil; Nichol, Michael B.; Noone, Declan; O'Mahony, Brian; Page, David; Stonebraker, Jeffrey; Thabane, Lehana; Crowther, Mark A.; Iorio, Alfonso Journal: Haemophilia Issue: Volume 25:Issue 1(2019) Page Start: 75 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
10. Treatment outcomes, quality of life, and impact of hemophilia on young adults (aged 18–30 years) with hemophilia. (December 2015) Authors: Witkop, Michelle; Guelcher, Christine; Forsyth, Angela; Hawk, Sarah; Curtis, Randall; Kelley, Laureen; Frick, Neil; Rice, Michelle; Rosu, Gabriela; Cooper, David L. Journal: American journal of hematology Issue: Volume 90(2015)Supplement 2 Page Start: S3 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗