1. Consequences of medication unavailability on patient anxiety: the example of the 2020 hydroxychloroquine availability crisis for patients with SLE – 18 months later. Issue 1 (25th January 2023) Authors: Cornet, Alain; Andersen, Jeanette; Tani, Chiara; Mosca, Marta Journal: Lupus science & medicine Issue: Volume 10:Issue 1(2023) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. Exploring patient education unmet needs for rare and complex connective tissue and musculoskeletal diseases: A survey of health care providers' and patients' expectations in Europe. (June 2022) Authors: Farhat, Meryem-Maud; Cornet, Alain; Frank, Charissa; Galetti, Ilaria; Grunert, Juergen; Guimarães, Vera; Vieira, Ana; Hachulla, Eric Journal: Chronic illness Issue: Volume 18:Number 2(2022) Page Start: 370 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. FRI0607 IDENTIFICATION OF UNMET NEEDS RELATED TO RARE AND COMPLEX CONNECTIVE TISSUE AND MUSCULOSKELETAL DISEASES (RCTDS) ACROSS EU: THE EXPERIENCE OF THE ERN RECONNET. (June 2019) Authors: Marinello, Diana; Ticciati, Simone; Talarico, Rosaria; Alexander, Tobias; Arnaud, Laurent; Cavagna, Lorenzo; Beretta, Lorenzo; Chaigne, Benjamin; Cornet, Alain; Costedoat-Chalumeau, Nathalie; Fischer-Betz, Rebecca; Frank, Charissa Hermine; Galetti, Ilaria; Grunert, Jürgen; Guimaraes, Vera; Iaccar... Journal: Annals of the rheumatic diseases Issue: Volume 78(2019)Supplement 2 Page Start: 999 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. Hydroxychloroquine availability during COVID-19 crisis and its effect on patient anxiety. Issue 1 (19th April 2021) Authors: Cornet, Alain; Andersen, Jeanette; Tani, Chiara; Mosca, Marta Journal: Lupus science & medicine Issue: Volume 8:Issue 1(2021) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
5. Hydroxychloroquine treatment in European patients with lupus erythematosus: dosing, retinopathy screening and adherence. Issue 1 (1st April 2021) Authors: Osmani, Zgjim; Schrama, Thijs J; Zacouris-Verweij, Wendy; Andersen, Jeanette; Frankel, Susan; Bultink, Irene E M; Cornet, Alain; van Vollenhoven, Ronald F Journal: Lupus science & medicine Issue: Volume 8:Issue 1(2021) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
6. I7 Patients expectations, and what we (can) do about it. (23rd March 2020) Authors: Cornet, Alain; Myllys, Kirsi; Charlet, Anne; Sluijmers, Annemarie; Costa, Marisa; Wijsma, Elfried; Andersen, Jeanette Journal: Lupus science & medicine Issue: Volume 7(2020)Supplement 1 Page Start: A3 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
7. Living with systemic lupus erythematosus in 2020: a European patient survey. Issue 1 (13th April 2021) Authors: Cornet, Alain; Andersen, Jeanette; Myllys, Kirsi; Edwards, Angela; Arnaud, Laurent Journal: Lupus science & medicine Issue: Volume 8:Issue 1(2021) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
8. Living with systemic lupus erythematosus in 2020: a European patient survey. Issue 1 (13th April 2021) Authors: Cornet, Alain; Andersen, Jeanette; Myllys, Kirsi; Edwards, Angela; Arnaud, Laurent Journal: Lupus science & medicine Issue: Volume 8:Issue 1(2021) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
9. Living with systemic lupus erythematosus: A patient engagement perspective. (7th July 2017) Authors: Mazzoni, Davide; Cornet, Alain; van Leeuw, Bernadette; Myllys, Kirsi; Cicognani, Elvira Journal: Musculoskeletal care Issue: Volume 16:Number 1(2018) Page Start: 67 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
10. OP0219 PARE LUPUS EUROPE YOUTH PANEL – WHAT WE LEARNED FROM YOUNG PEOPLE LIVING WITH LUPUS. (June 2019) Authors: Cornet, Alain; Andersen, Jeanette Journal: Annals of the rheumatic diseases Issue: Volume 78(2019)Supplement 2 Page Start: 186 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗