National consensus to develop core outcomes for the evaluation of complications from excess weight (CEW) clinics: results of a national Delphi process. Issue 4 (4th January 2023)

• Record Type: Journal Article
• Authors: Stilwell, Philippa Anna; White, Billy; Graham, Catherine; Rigby, Emma; Shield, Julian P H; Brandreth, Rachael; Solti, Sophie; Owen, Richard; Kenny, Simon
• Other Names: author non-byline.; Law James author non-byline.; Sachdev Pooja author non-byline.; Stewart Laura author non-byline.; Green Peter author non-byline.; Nash Elizabeth author non-byline.; Davis Nikki author non-byline.; Ells Louisa author non-byline.; Nicholls Dasha author non-byline.; Searles Jo author non-byline.; Selby Natalie author non-byline.; Westphal Birgit author non-byline.; Augustus Rhian author non-byline.; Senniappan Senthil author non-byline.; Adams Martha Ford author non-byline.; Ong Ken author non-byline.; Webb Emma author non-byline.; Wright Neil author non-byline.; Carrol Thomas author non-byline.; Peh Gin Thian author non-byline.
• Is Part Of: Archives of disease in childhood. Volume 108:Issue 4(2023)
• Page Start: 296
• Page End: 299
• Publication Date: 2023-01-04
• Subjects: child health -- health services research; Children -- Diseases -- Periodicals; Infants -- Diseases -- Periodicals; 618.920005
• DOI: 10.1136/archdischild-2022-324550
• Languages: English
• ISSNs: 0003-9888

Abstract

Abstract : Objective: In 2021, centres across all seven NHS-England regions were selected to develop pilot clinics with the aim of treating children and young people (CYP) living with complications relating to excess weight (CEW). We led a process to develop core outcomes to enable the evaluation of these clinics. Methods: A two-round Delphi process, virtual steering group meetings and two patient representation workshops were used to agree the most important outcomes for both clinicians/allied professionals and representative prospective service users. Results: A total of 119 clinicians/allied professionals were invited to contribute to the Delphi process: 62 (52%) agreed and completed round 1 and 47 of these (76%) went on to complete round 2. Six young people (age range 13–17 years) and six parents were involved in two patient representation workshops and their experiences fed into virtual steering group meetings, via a representative. There were 44 outcomes assessed in round 1 and 21 outcomes assessed in round 2. There were 16 core outcomes selected: anthropometric, glucose tolerance/insulin resistance/type 2 diabetes, blood pressure, lipid profile, breathing problems, identification of aetiology, non-alcoholic fatty liver disease, idiopathic intracranial hypertension, anxiety, depression, self-esteem, quality of life, school attendance, dietary habits including disordered eating, exercise and activity habits. Conclusions: Use of an online Delphi process, patient representation workshops and virtual steering group meetings has enabled the development of core outcomes for clinical obesity services with eight physical health, five mental health and three self-management outcomes. Further work is needed to develop outcome measures to complete a core outcome set. These will be used to guide the evaluation of novel regional clinics for the treatment of complications of excess weight.