Exploring clinicians' decision-making processes about end-of-life care after burns: A qualitative interview study. Issue 3 (May 2023)

• Record Type: Journal Article
• Authors: Reeder, Sandra; Cleland, Heather J.; Gold, Michelle; Tracy, Lincoln M.
• Is Part Of: Burns. Volume 49:Issue 3(2023)
• Page Start: 595
• Page End: 606
• Publication Date: 2023-05
• Subjects: Burns -- Qualitative research -- Decision-making -- End of life -- Palliative care -- Terminal care; Burns and scalds -- Periodicals; 617.11
• DOI: 10.1016/j.burns.2022.12.001
• Languages: English
• ISSNs: 0305-4179

Abstract

Abstract: Introduction: Little is known about treatment decision-making experiences and how/why particular attitudes exist amongst specialist burn clinicians when faced with patients with potentially non-survivable burn injuries. This exploratory qualitative study aimed to understand clinicians' decision-making processes regarding end-of-life (EoL) care after a severe and potentially non-survivable burn injury. Methods: Eleven clinicians experienced in EoL decision-making were interviewed via telephone or video conferencing in June-August 2021. A thematic analysis was undertaken using a framework approach. Results: Decision-making about initiating EoL care was described as complex and multifactorial. On occasions when people presented with 'unsurvivable' injuries, decision-making was clear. Most clinicians used a multidisciplinary team approach to initiate EoL; variations existed on which professions were included in the decision-making process. Many clinicians reported using protocols or guidelines that could be personalised to each patient. The use of pathways/protocols might explain why clinicians did not report routine involvement of palliative care clinicians in EoL discussions. Conclusion: The process of EoL decision-making for a patient with a potentially non-survivable burn injury was layered, complex, and tailored. Processes and approaches varied, although most used protocols to guide EoL decisions. Despite the reported complexity of EoL decision-making, palliative care teams were rarely involved or consulted. Highlights: A small proportion of burn patients present with possible non-survivable injuries. Burn care clinicians need to make treatment decisions for these patients. The treatment decision-making process is complex, layered, and personalised. There is room for greater palliative care service involvement in these decisions.