Severity of illness and distress in caregivers of patients with schizophrenia: Do internalized stigma and caregiving burden mediate the relationship?. (24th November 2020)

• Record Type: Journal Article
• Authors: Guan, Ziyao; Wang, Yuwei; Lam, Louisa; Cross, Wendy; Wiley, James A.; Huang, Chongmei; Bai, Xiaoling; Sun, Mei; Tang, Siyuan
• Is Part Of: Journal of advanced nursing. Volume 77:Number 3(2021)
• Page Start: 1258
• Page End: 1270
• Publication Date: 2020-11-24
• Subjects: caregiving burden -- distress -- family caregiver -- internalized stigma -- mediation analysis -- nursing -- schizophrenia -- severity of illness; Nursing -- Periodicals; 610.7305
• DOI: 10.1111/jan.14648
• Languages: English
• ISSNs: 0309-2402

Abstract

Abstract: Aims: To test a multiple mediation model of internalized stigma and caregiving burden in the relationship between severity of illness and distress among family caregivers of persons living with schizophrenia. Design: This is a cross‐sectional study. Methods: Data were collected from a consecutive sample of 344 Chinese family caregivers of persons living with schizophrenia between April‐August 2018. Instruments used in this research included the Clinical Global Impression‐Severity of Illness, the Internalized Stigma of Mental Illness Scale, the Caregiver Burden Inventory, and the Distress Thermometer. Data analysis was conducted using descriptive statistics, the Spearman correlation, and regression analysis to estimate direct and indirect effects using bootstrap analysis. Results: This research found that internalized stigma and caregiving burden can separately and sequentially mediate the relationship between severity of illness and distress. Moreover the mediation of internalized stigma plays the largest role among the multiple mediations. Conclusion: The severity of illness, internalized stigma, and caregiving burden are significant factors of distress among family caregivers of persons living with schizophrenia. The future intervention studies which be designed aiming at the three factors may be beneficial for family caregivers of persons living with schizophrenia. Impact: This research examined the psychosocial development of distress and indicated that interventions improving patients' symptoms and decreasing internalized stigma and caregiving burden can help to prevent or reduce distress among family caregivers.