Participant engagement to develop report-back materials for personal air monitoring. Issue 1 (3rd March 2023)

• Record Type: Journal Article
• Authors: Ryan, Patrick H.; Wolfe, Chris; Parsons, Allison; Brokamp, Cole; Turner, Ashley; Haynes, Erin
• Is Part Of: Journal of clinical and translational science. Volume 7:Issue 1(2023)
• Publication Date: 2023-03-03
• Subjects: Participant engagement -- reporting study findings to participants -- personal air monitoring -- focus group -- communication; Clinical medicine -- Research -- Periodicals; Medicine, Experimental -- Periodicals; Human experimentation in medicine -- Periodicals; 616.027
• DOI: 10.1017/cts.2023.30
• Languages: English
• ISSNs: 2059-8661

Abstract

Abstract: Background: Studies that measure environmental exposures in biological samples frequently provide participants their results. In contrast, studies using personal air monitors do not typically provide participants their monitoring results. The objective of this study was to engage adolescents who completed personal air sampling and their caregivers to develop understandable and actionable report-back documents containing the results of their personal air sampling. Methods: Adolescents and their caregivers who previously completed personal air sampling participated in focus groups to guide the development of report-back materials. We conducted thematic analyses of focus group data to guide the design of the report-back document and convened experts in community engagement, reporting study results, and human subjects research to provide feedback. Final revisions to the report-back document were made based on follow-up focus group feedback. Results: Focus groups identified critical components of an air-monitoring report-back document to include an overview of the pollutant being measured, a comparison of individual personal sampling data to the overall study population, a guide to interpreting results, visualization of individual data, and additional information on pollution sources, health risks, and exposure reduction strategies. Participants also indicated their desire to receive study results in an electronic and interactive format. The final report-back document was electronic and included background information, participants' results presented using interactive maps and figures, and additional material regarding pollution sources. Conclusion: Studies using personal air monitoring technology should provide research participants their results in an understandable and meaningful way to empower participants with increased knowledge to guide exposure reduction strategies.