Advance care planning (ACP) for specialists managing cirrhosis: A focus on patient‐centered care. Issue 5 (6th April 2018)

• Record Type: Journal Article
• Authors: Brisebois, Amanda; Ismond, Kathleen P.; Carbonneau, Michelle; Kowalczewski, Jan; Tandon, Puneeta
• Is Part Of: Hepatology. Volume 67:Issue 5(2018)
• Page Start: 2025
• Page End: 2040
• Publication Date: 2018-04-06
• Subjects: Heart -- Diseases -- Nursing -- Periodicals; Lungs -- Diseases -- Nursing -- Periodicals; Intensive care nursing -- Periodicals; Foie -- Maladies -- Périodiques; 616.362
• DOI: 10.1002/hep.29731
• Languages: English
• ISSNs: 0270-9139

Abstract

Abstract : Advance care planning (ACP) and goals of care designation (GCD) are being integrated into modern health care. In cirrhosis, uptake and adoption of these practices have been limited with physicians citing many perceived barriers and limitations. Recognizing the many tangible benefits of ACP and GCD processes in patients with life‐limiting chronic diseases, the onus is on health practitioners to initiate and direct these conversations with their patients and surrogates. Drawing upon the literature and our experiences in palliative care and cirrhosis, we provide an actionable framework that can be readily implemented into a busy clinical setting by a practitioner. Conversation starters, visual aids, educational resources (for patients and practitioners), and videos of mock physician‐patient scenarios are presented and discussed. Importantly, we have customized each of these tools to meet the unique health care needs of patients with cirrhosis. The inherent flexibility of our approach to ACP discussions and GCD can be further modified to accommodate practitioner preferences. Conclusion: In our clinics, this assemblage of "best practice tools" has been well received by patients and surrogates enabling us to increase the number of outpatients with cirrhosis who have actively contributed to their GCD before acute health events and are supported by well‐informed surrogates. (Hepatology 2018;67:2025‐2040).