'We can't do it alone': Perceived social support in parents of children with a significant cognitive and motor developmental delay. Issue 2 (29th November 2021)

• Record Type: Journal Article
• Authors: Van Keer, Ines; Van Leeuwen, Karla; Maes, Bea
• Is Part Of: Journal of applied research in intellectual disabilities. Volume 35:Issue 2(2022)
• Page Start: 531
• Page End: 536
• Publication Date: 2021-11-29
• Subjects: parents -- profound and multiple disabilities -- significant cognitive and motor developmental delay -- social support -- support sources; Learning disabilities -- Periodicals; Mental retardation -- Periodicals; Learning disabled -- Periodicals; People with mental disabilities -- Periodicals; 616.85880072
• DOI: 10.1111/jar.12964
• Languages: English
• ISSNs: 1360-2322

Abstract

Abstract: Background: It is generally acknowledged that parent social support is an important target for intervention. To explore the specific needs of parents of young children with a significant cognitive and motor developmental delay (SDD), we aim to chart the sources and perceived sufficiency of the social support they receive. Method: Within the context of a broader project, 42 parents of a young child with SDD filled out a questionnaire on contextual factors, including information on social support. Results: The majority of parents reported to receive (more than) sufficient support. Insufficiency is primarily reported with regard to practical support. Apart from the partner, grandparents of the child were the most common source of support. Conclusions: This study confirms the importance of professional support and work‐life balance within this specific target group. Specific attention for practical support needs seems warranted considering the high basic care needs of these children.