Telemedicine visits in myasthenia gravis: Expert guidance and the Myasthenia Gravis Core Exam (MG‐CE). Issue 3 (7th July 2021)

• Record Type: Journal Article
• Authors: Guidon, Amanda C.; Muppidi, Srikanth; Nowak, Richard J.; Guptill, Jeffrey T.; Hehir, Michael K.; Ruzhansky, Katherine; Burton, Leeann B.; Post, David; Cutter, Gary; Conwit, Robin; Mejia, Nicte I.; Kaminski, Henry J.; Howard, James F.
• Is Part Of: Muscle & nerve. Volume 64:Issue 3(2021)
• Page Start: 270
• Page End: 276
• Publication Date: 2021-07-07
• Subjects: COVID‐19 -- myasthenia gravis -- outcome measures -- physcial examination -- telemedicine; Neuromuscular diseases -- Periodicals; Muscles -- Periodicals; Nerves -- Periodicals; 616.74
• DOI: 10.1002/mus.27260
• Languages: English
• ISSNs: 0148-639X

Abstract

Abstract: Introduction/Aims: Telemedicine may be particularly well‐suited for myasthenia gravis (MG) due to the disorder's need for specialized care, its hallmark fluctuating muscle weakness, and the potential for increased risk of virus exposure among patients with MG during the coronavirus disease 2019 (COVID‐19) pandemic during in‐person clinical visits. A disease‐specific telemedicine physical examination to reflect myasthenic weakness does not currently exist. Methods: This paper outlines step‐by‐step guidance on the fundamentals of a telemedicine assessment for MG. The Myasthenia Gravis Core Exam (MG‐CE) is introduced as a MG‐specific, telemedicine, physical examination, which contains eight components (ptosis, diplopia, facial strength, bulbar strength, dysarthria, single breath count, arm strength, and sit to stand) and takes approximately 10 minutes to complete. Results: Pre‐visit preparation, remote ascertainment of patient‐reported outcome scales and visit documentation are also addressed. Discussion: Additional knowledge gaps in telemedicine specific to MG care are identified for future investigation. Abstract : See Editorial on pages 241–242 in this issue .