The meaning of being a visiting child of a seriously ill parent receiving care at the ICU. Issue 1 (1st January 2021)

• Record Type: Journal Article
• Authors: Knutsson, Susanne; Golsäter, Marie; Enskär, Karin
• Is Part Of: International journal of qualitative studies on health and well-being. Volume 16:Issue 1(2021)
• Publication Date: 2021-01-01
• Subjects: Visiting -- child -- intensive care -- information -- caring; Qualitative research -- Periodicals; Health -- Research -- Methodology -- Periodicals; 362.1072
• DOI: 10.1080/17482631.2021.1999884
• Languages: English
• ISSNs: 1748-2623

Abstract

ABSTRACT: Purpose: Children's visits to the ICU are still restricted, and more focus on the child's own needs and experiences are needed. The aim of this study is to illustrate the meaning of being a visiting child of a seriously ill parent receiving care at the ICU. Method: A qualitative descriptive design was used, with open-ended interviews with seven children (6–18 years) performed and analysed using a phenomenological research approach. Findings: Being a visiting child of a seriously ill parent receiving care at the ICU is described as a life situation taking place in an unfamiliar environment, characterized by a heartfelt, genuine desire to be there, in an interdependence entailing offering a loved one the help they need while at the same time being seen in a compassionate way and being able to share, revealing a sudden awakening of an inner truth of reality and a sense of a healing wisdom of understanding. Conclusions: The children felt good when they visited their ill parent, but at the same time not fully involved, and desired a more compassionate, caring approach by the nurses. Improvements are needed in how to approach visiting children in a more individual and caring way.