Development of a survey tool for assessing life traumas and barriers to HIV care in a center of excellence for HIV/AIDS in Appalachian Tennessee. Issue 4 (2nd October 2021)

• Record Type: Journal Article
• Authors: Loudermilk, Elaine N.; White, Melissa; Turner, Emmitt; Jones, Morgan K.; Mamudu, Hadii M.; Bynum, Lisa; Underwood, Roxanne F.; Dotson, L. Susan; Adkins, James; Bohannon, Joy M.; Mathis, Stephanie M.; Foster, Kelly N.; Pack, Robert; Moorman, Jonathan; Zheng, Shimin; Quinn, Megan
• Is Part Of: Journal of HIV/AIDS & social services. Volume 20:Issue 4(2021)
• Page Start: 354
• Page End: 378
• Publication Date: 2021-10-02
• Subjects: HIV care -- barriers to care -- adverse childhood experiences -- retention in care; AIDS (Disease) -- Social aspects -- Periodicals; AIDS (Disease) -- Patients -- Services for -- Periodicals; 362.1969792005
• DOI: 10.1080/15381501.2021.1999361
• Languages: English
• ISSNs: 1538-1501

Abstract

Abstract: Introduction: A culturally competent survey currently does not exist to characterize the burden of Adverse Childhood Experiences (ACEs) among a HIV/AIDS population receiving care at a local Center of Excellence (COE). Methods: A qualitative study was conducted including 11 interviews involving opinions on national surveillance questions to develop a culturally competent survey. Purposive sampling, reactive probing, and analysis of transcribed interviews were completed using structured coding to determine which questions were kept, modified, or removed​ in the final survey. Results: The final 55-question survey contained more generalized ACE questions, topics pertaining to barriers to HIV care, and a list that patients could select from to indicate what they need to improve their HIV care. Conclusion: The final survey provided the opportunity to characterize the burden of ACEs at a COE. Future directions involve piloting the survey as a quality improvement tool with the goal of increasing retention rates through more individualized HIV care.