Neglected bodily senses in women living with vertebral fracture: a focus group study. (23rd July 2019)

• Record Type: Journal Article
• Authors: Drew, Sarah; Clark, Emma; Al-Sari, Usama; Moore, Andrew; Gooberman-Hill, Rachael
• Is Part Of: Rheumatology. Volume 59:Number 2(2020)
• Page Start: 379
• Page End: 385
• Publication Date: 2019-07-23
• Subjects: vertebral fracture -- osteoporosis -- qualitive research -- pain -- screening; Rheumatism -- Periodicals; Rheumatology -- Periodicals; 616.723005
• DOI: 10.1093/rheumatology/kez249
• Languages: English
• ISSNs: 1462-0324

Abstract

Abstract: Objective: Older women are at particular risk of osteoporosis. Among women with osteoporosis, fractures of the vertebra (vertebral fracture) are common, hard to detect and associated with risk of further fracture. Identifying vertebral fracture in a timely manner allows instigation of preventive measures to reduce the risk of further fracture. Although detection of vertebral fracture requires spinal radiograph, many women do not receive referral. To begin development of a screening tool to identify women in need of referral we undertook a qualitative study to characterize women's experiences of vertebral fracture, using Eccleston's 'Ten Neglected Bodily Senses'. Methods: Four qualitative focus groups were conducted with women who had been diagnosed with vertebral fracture ( n = 19, age 60–91 years). Data were audio-recorded, transcribed and analysed thematically using the 'Ten Neglected Bodily Senses'. Results: Women's experiences of vertebral fractures related to seven senses: pain, movement, fatigue, balance, pressure, appetite and breathing. Pain was the dominant sense and all participants explained how pain increased with activity, reaching a crescendo, and described strategies to minimize this disruption. Most participants had become physically shorter, making some feel 'squashed', putting pressure on other body parts. Some described appetite loss or a sense of restricted breathing. Participants experienced a sense of being 'pulled' forwards, impacting on balance and exacerbating fear of falling. Conclusion: The study found senses that have not been previously described in the experiences of women with vertebral fracture. These will be used to inform the design of a new screening tool for use in primary care.