Behavioral and Pharmacological Adherence in Pediatric Sickle Cell Disease: Parent–Child Agreement and Family Factors Associated With Adherence. (21st April 2017)

• Record Type: Journal Article
• Authors: Klitzman, Page H; Carmody, Julia K; Belkin, Mary H; Janicke, David M
• Is Part Of: Journal of pediatric psychology. Volume 43:Number 1(2018)
• Page Start: 31
• Page End: 39
• Publication Date: 2017-04-21
• Subjects: adherence -- parent -- parent–child communication -- pediatric sickle cell disease -- problem-solving -- routines; Clinical child psychology -- Periodicals; 618.9289005
• DOI: 10.1093/jpepsy/jsx077
• Languages: English
• ISSNs: 0146-8693

Abstract

Abstract: Objective: This study aimed to evaluate agreement between children and parents on a measure of behavioral and pharmacological adherence in children with sickle cell disease (SCD), and the associations among family factors (i.e., problem-solving skills, routines, communication) and adherence behaviors. Methods: In all, 85 children (aged 8–18 years) with SCD and their parents completed questionnaires assessing individual and family factors. Results: Overall parent–child agreement on an adherence measure was poor, particularly for boys and older children. Greater use of child routines was associated with better overall child-reported adherence. Open family communication was associated with higher overall parent-reported adherence. Conclusions: While further research is needed before definitive conclusions can be drawn, results suggest the need to assess child adherence behaviors via both child and parent reports. Findings also suggest that more daily family routines and open family communication may be protective factors for better disease management.