Education on the consequences of traumatic brain injury for children and adolescents with TBI and families/caregivers: a systematic scoping review. (2nd January 2023)

• Record Type: Journal Article
• Authors: Pappadis, Monique R.; Lundine, Jennifer P.; Kajankova, Maria; Hreha, Kimberly P.; Doria, Nancy; Cai, Xinsheng Cindy; Flanagan, Joanne E.
• Is Part Of: Brain injury. Volume 37:Number 1(2023)
• Page Start: 1
• Page End: 23
• Publication Date: 2023-01-02
• Subjects: Family education -- patient education -- pediatric -- self-management -- traumatic brain injury; Brain damage -- Periodicals; Brain -- Wounds and injuries -- Periodicals; Brain Injuries -- Periodicals; 617.481
• DOI: 10.1080/02699052.2022.2145357
• Languages: English
• ISSNs: 0269-9052

Abstract

ABSTRACT: Objective(s): To examine the breadth of education or training on the consequences of traumatic brain injury (TBI) for children and adolescents with TBI and their families/caregivers. Methods: Systematic scoping review of literature published through July 2018 using eight databases and education, training, instruction, and pediatric search terms. Only studies including pediatric participants (age <18) with TBI or their families/caregivers were included. Six independent reviewers worked in pairs to review abstracts and full-text articles independently, and abstracted data using a REDCap database. Results: Forty-two unique studies were included in the review. Based on TBI injury severity, 24 studies included persons with mild TBI (mTBI) and 18 studies focused on moderate/severe TBI. Six studies targeted the education or training provided to children or adolescents with TBI. TBI education was provided primarily in the emergency department or outpatient/community setting. Most studies described TBI education as the main topic of the study or intervention. Educational topics varied, such as managing TBI-related symptoms and behaviors, when to seek care, family issues, and returning to work, school, or play. Conclusions: The results of this scoping review may guide future research and intervention development to promote the recovery of children and adolescents with TBI.