Why Rotationplasty? A Qualitative Study of Decision-Making by Families of Patients With Primary Bone Sarcoma. (January 2022)

• Record Type: Journal Article
• Authors: Chan, Chung M; Lindsay, Adam D.; Spiguel, Andre R V; Parker Gibbs, C.; Scarborough, Mark T
• Is Part Of: Journal of patient experience. Volume 9(2022)
• Publication Date: 2022-01
• Subjects: Cancer -- clinician–patient relationship -- medical decision making -- rotationplasty -- osteosarcoma -- Ewing's sarcoma; Patient satisfaction -- Periodicals; Patient satisfaction -- United States -- Periodicals; Patient participation -- Periodicals; Patient participation -- United States -- Periodicals; Patient satisfaction; Patient participation; United States; 362.1068
• DOI: 10.1177/23743735211069818
• Languages: English
• ISSNs: 2374-3735

Abstract

Rotationplasty is an established technique that is indicated as part of the surgical reconstruction for certain patients with primary bone tumors around the knee who undergo tumor resection. There is considerable variation in the application of rotationplasty by surgeons as well as acceptance of the procedure by patients who may be candidates for this procedure. We qualitatively studied the decision-making process of families of patients who had undergone rotationplasty by interviewing 4 patients and their families using semi-structured interviews. Thematic analysis identified the following themes that were important in the decision-making process: (1) the desire for good information sources, (2) finding value in meeting with other patients who had been faced with a similar decision, (3) prioritizing function over cosmesis, (4) a desire to limit the need for revision surgeries, and (5) accepting that a return to normalcy is not an option with a surgery. Physicians and patients faced with a similar decision can benefit from a better understanding of the process, and by the normalization of anxieties and concerns that they may experience.