The development and validation of a decision aid to facilitate patient choice of surgery versus radiotherapy for high‐risk basal cell carcinoma. (12th August 2022)

• Record Type: Journal Article
• Authors: Banks, Jamie; Odili, Joy; Zaidi, Shane; Lalondrelle, Susan; Singh, Masha; Akhras, Victoria; Jiyad, Zainab
• Is Part Of: Clinical and experimental dermatology. Volume 47:Number 11(2022)
• Page Start: 1995
• Page End: 1997
• Publication Date: 2022-08-12
• Subjects: Skin -- Diseases -- Periodicals; 616.5
• DOI: 10.1111/ced.15325
• Languages: English
• ISSNs: 0307-6938

Abstract

Abstract: Basal cell carcinoma (BCC) is an increasingly common cancer. For high‐risk BCCs, there are several treatment options, with similar efficacies. The current best practice in deciding upon a particular treatment is for a patient‐centred approach. At present, there are few resources available for patients to assist their choice. This reduces patient autonomy and increases the burden on clinicians within clinic. Patient decision aids (PDAs) have been shown to increase patient autonomy and facilitate shared decision‐making. Currently, there is no published PDA designed to facilitate the decision between surgical management or radiotherapy in high‐risk BCCs. We developed a novel decision aid designed along the International Patient Decision Aid Standards to fill this clinical need, and evaluated its acceptance by both patients and clinicians. We describe the challenges faced at initial alpha and subsequent beta testing, and go on to validate our PDA with both the Decisional Conflict Scale and the nine‐item Shared Decision Making Questionnaire (SDMQ9). We include an example of the PDA and encourage other units to modify the PDA for their own use. Abstract : Patient decision aids (PDAs) are increasingly used by clinicians in the setting of shared decision‐making. We present a novel PDA for patients presenting with high‐risk basal cell carcinoma, to aid in their decision between radiotherapy and surgery. We explore the design process for the decision aid and its validation using validated outcome measures, the nine‐item Shared Decision Making Questionnaire and the Decisional Conflict Scale, including an illustration of the example decision aid.