Achieving a Representative Sample of Asian Americans in Biomedical Research Through Community-Based Approaches: Comparing Demographic Data in the All of Us Research Program With the American Community Survey. (January 2023)

• Record Type: Journal Article
• Authors: Randal, Fornessa T.; Lozano, Paula; Qi, Siya; Maene, Chieko; Shah, Sameep; Mo, Yicklun; Ratsimbazafy, Francis; Boerwinkle, Eric; Cicek, Mine; Clark, Cheryl R.; Cohn, Elizabeth; Gebo, Kelly; Loperena, Roxana; Mayo, Kelsey; Mockrin, Stephen; Ohno-Machado, Lucila; Schully, Sheri; Ramirez, Andrea H.; Aschebrook-Kilfoy, Briseis; Ahsan, Habibul; Lam, Helen; Kim, Karen E.
• Is Part Of: Journal of transcultural nursing. Volume 34:Number 1(2023)
• Page Start: 59
• Page End: 67
• Publication Date: 2023-01
• Subjects: Asian American -- biomedical research -- CLINICAL AREAS -- community-based approaches -- health disparities -- minority health; Transcultural nursing -- Periodicals; Nursing -- Cross-cultural studies -- Periodicals; Health attitudes -- Cross-cultural studies -- Periodicals; 610.73
• DOI: 10.1177/10436596221130796
• Languages: English
• ISSNs: 1043-6596

Abstract

Background: Underrepresented persons are often not included in biomedical research. It is unknown if the general Asian American population is being represented in All of Us . The purpose of this study was to compare the Asian demographic data in the All of Us cohort with the Asian nationally representative data from the American Community Survey. Method: Demographic characteristics and health literacy of Asians in All of Us were examined. Findings were qualitatively compared with the Asian data in the 2019 American Community Survey 1-year estimate. Results: Compared with the national composition of Asians, less All of Us participants were born outside the United States (64% vs 79%), were younger, and had higher levels of education (76% vs 52%). Over 60% of All of Us participants reported high levels of health literacy. Conclusion: This study had implications for the development of strategies that ensure diverse populations are represented in biomedical research.