Patient Perspectives of Sickle Cell Management in the Emergency Department. Issue 2 (April 2021)

• Record Type: Journal Article
• Authors: Crego, Nancy; Masese, Rita; Bonnabeau, Emily; Douglas, Christian; Rains, Gary; Shah, Nirmish; Tanabe, Paula
• Is Part Of: Critical care nursing quarterly. Volume 44:Issue 2(2021)
• Page Start: 160
• Page End: 174
• Publication Date: 2021-04
• Subjects: emergency service -- hospital -- perception -- sickle cell; Critical care medicine -- Periodicals; Intensive care nursing -- Periodicals; Education, Nursing, Continuing -- Periodicals; Critical Care -- Periodicals; Emergencies -- Periodicals; 616.028
• DOI: 10.1097/CNQ.0000000000000350
• Languages: English
• ISSNs: 0887-9303

Abstract

Abstract : Sickle cell disease (SCD) is a common genetic blood disorder predominantly affecting African Americans in the United States. The objective of this study was to use a multimethods approach to describe how patients with SCD in North Carolina perceive the care they receive in emergency departments (EDs). Fourteen participants completed an interview (n = 10) or 2 focus groups (n = 2 per focus group) and 51 completed surveys. Sixty percent of participants with pain attack "very much" or "quite a bit" avoided going to the ED for care because of prior bad experiences and 50% of participants reported waiting 120 minutes or more in the ED for treatment of their sickle cell pain. Participants reported that stigma associated with provider perception of drug-seeking behavior is a persistent problem in the ED. Participant recommendations warrant further investigation to address persistent SCD quality-of-care concerns in the ED.