EDS-related Feeding Difficulties: Preventing the Placement of a Surgical Feeding Tube. Issue 1 (16th February 2022)

• Record Type: Journal Article
• Authors: Kilgore, Alexandra L.; Hawa, Juliette T.; Liu, Edwin; Belkind-Gerson, Jaime; Santucci, Kourtney Kuss
• Is Part Of: JPGN reports. Volume 3:Issue 1(2022)
• Page Start: e147
• Publication Date: 2022-02-16
• Subjects: Pediatric gastroenterology -- Periodicals; Children -- Nutrition -- Periodicals; Children -- Nutrition; Pediatric gastroenterology; Infant Nutritional Physiological Phenomena; Child Nutritional Physiological Phenomena; Gastrointestinal Diseases; Infant; Child; Periodicals; Periodical; Case Reports; 618.9233
• DOI: 10.1097/PG9.0000000000000147
• Languages: English
• ISSNs: 2691-171X

Abstract

Abstract : Feeding difficulties due to functional gastrointestinal (GI) symptoms (i.e., nausea, pain, and bloating) are well described in patients with hypermobile-type Ehlers-Danlos Syndrome. These symptoms are particularly difficult to treat when there is comorbid dysautonomia, usually manifesting as postural orthostatic tachycardia syndrome. Here, we describe a successful trial of multidisciplinary rehabilitative interventions to avoid placement of a surgical feeding tube in such a patient. Main components of intervention were intensive pelvic floor physiotherapy and biofeedback, occupational therapy focused on coping with feeding-related symptoms, psychology support, and medications targeting histamine blockade and enhancing intestinal motility.