Caregiver role strain in caring for vulnerable persons living with HIV: correlates of caregiver and care recipient reports. Issue 10 (3rd October 2022)

• Record Type: Journal Article
• Authors: Mitchell, Mary; Hansen, Eric; Tseng, Tuo-Yen; Shen, Mary; Catanzarite, Zachary; Cruz-Oliver, Dulce; Parker, Lauren; Knowlton, Amy
• Is Part Of: AIDS care. Volume 34:Issue 10(2022)
• Page Start: 1314
• Page End: 1320
• Publication Date: 2022-10-03
• Subjects: Caregiver/ caregiving role strain -- Black or African American race/ethnicity -- HIV/AIDS -- stigma -- depression/depressive symptoms -- social support networks; AIDS (Disease) -- Social aspects -- Periodicals; AIDS (Disease) -- Psychological aspects -- Periodicals; AIDS (Disease) -- Patients -- Care -- Periodicals; Acquired Immunodeficiency Syndrome; 362.1969792
• DOI: 10.1080/09540121.2021.1968997
• Languages: English
• ISSNs: 0954-0121

Abstract

ABSTRACT: Informal care of family and friends is important for the health and well-being of disadvantaged persons living with HIV (PLWH). Caregiver role strain may threaten the function and continuity of their main relationships and their health impacts. Data were from a disadvantaged, primarily African American, sample of PLWH care recipients. Caregiver role strain was operationalized as a latent factor measured by variables including PLWH's perceptions of their caregiver not wanting or complaining about helping them or wanting a break. We found that greater caregiver role strain was associated with higher levels of HIV-related stigma and depressive symptoms. Lower role strain was associated with more collaborative problem solving and shared medical treatment decision-making. Caregiver role strain was linked to disadvantaged PLWHs' worse stigma and mental health; collaborative engagement in care and coping assistance were protective of role strain. Caregiving relationship-focused research and interventions are needed for resourcing and sustaining disadvantaged African American communities' caregiving and health.