INTERDISCIPLINARY CONSENUS ON THE MANAGEMENT OF IIH IN THE UK. Issue 12 (15th November 2016)

• Record Type: Journal Article
• Authors: Hassan-Smith, Ghaniah; Mollan, Susan; Davies, Brendan; Shaw, Simon; Chavda, Bhawisha Swarupsinh; Krishnan, Anita; Mallucci, Conor; Silver, Nicholas; Wakerley, Benjamin; Sinclair, Alexandra
• Is Part Of: Journal of neurology, neurosurgery and psychiatry. Volume 87:Issue 12(2016)
• Page Start: e1
• Page End: e1
• Publication Date: 2016-11-15
• Subjects: Neurology -- Periodicals; Nervous system -- Surgery -- Periodicals; Psychiatry -- Periodicals; 616.8
• DOI: 10.1136/jnnp-2016-315106.26
• Languages: English
• ISSNs: 0022-3050

Abstract

Abstract : Management of Idiopathic Intracranial Hypertension (IIH) is not standardised. A multidisciplinary Special Interest Group (SIG) was established to develop a uniform investigation and treatment strategy according to disease severity based on current literature and expert consensus. Methods: A systematic literature review of "IIH";"Benign IH" and "pseudotumour cerebri" was followed by a SIG meeting, to identify the population, interventions, controls and outcomes (PICO) questions. Discrepant views were reflected in a questionnaire disseminated though a modified Delphi approach to district general and tertiary hospital interdisciplinary specialists. Results: 44/66 questionnaires were returned. 51% would image (CT/MRI) patients with definite papilloedema <24 hrs and 40% would image between 24–48 hrs. In these patients 84% would then proceed to venography (50:50, MRV:CTV), conducted within 48 hrs in 74% respondents.79% never diagnosed IIH in those with a lumbar puncture pressure <25 cm CSF. Referral for neurosurgical intervention was predominantly for visual deterioration (83%) with only 2% referring exclusively for headache management. Neurosurgical procedures varied: 48% ventriculoperitoneal shunting, 33% lumboperitoneal shunting, 5% optic nerve sheath fenestration, 14% other and 0% venous stenting. A consensus on follow-up times, according to papilloedema severity and visual function (perimetry), was obtained. Conclusions: Evidence for IIH management is minimal. Consensus on many aspects of management was demonstrated which will help establish a practical guideline.