Caring for Pediatric Patients With Epidermolysis Bullosa in the Emergency Department. Issue 8 (August 2019)

• Record Type: Journal Article
• Authors: Jenkinson, Helena A.; Lundgren, Ashley D.; Levy, Moise L.; Diaz, Lucia Z.
• Is Part Of: Pediatric emergency care. Volume 35:Issue 8(2019)
• Publication Date: 2019-08
• Subjects: epidermolysis bullosa -- iatrogenic trauma -- mucosa -- skin -- wound care -- immunobullous disease -- health care delivery; Pediatric emergencies -- Periodicals; 618.92002505
• DOI: 10.1097/PEC.0000000000001500
• Languages: English
• ISSNs: 0749-5161

Abstract

Abstract : Abstract: Epidermolysis bullosa (EB) refers to a heterogeneous group of genetic disorders characterized by epithelial fragility. We provide guidelines for management of pediatric patients with EB in the emergency department based on a review of literature, as well as insights from our own experiences caring for patients with EB. The purpose of the guidelines proposed is prevention of avoidable iatrogenic trauma to the skin and mucosa of patients with EB who are presenting to the emergency department for a variety of reasons.