Antegrade continence enema stoppers: a pilot study on patient preferences. (11th August 2022)

• Record Type: Journal Article
• Authors: Hooker, Emily; Martin, Benjamin; Gee, Oliver; Jester, Ingo
• Is Part Of: British journal of nursing. Volume 31:Number 15(2022)
• Page Start: 770
• Page End: 774
• Publication Date: 2022-08-11
• Subjects: Constipation -- Antegrade continence enema -- Paediatric bowel problems -- ACE stopper -- Quality of life; Nursing -- Periodicals; 610.73
• DOI: 10.12968/bjon.2022.31.15.770
• Languages: English
• ISSNs: 0966-0461

Abstract

Abstract : Background: Severe constipation can have a major impact on a child's quality of life and that of their families. Forming an antegrade continence enema (ACE) can be a transformational intervention to manage severe symptoms. However, operations can also have unpredictable negative consequences such as stomal stenosis or leaks from the ACE site. Aim: To investigate whether the choice of an ACE stopper can increase patient satisfaction and compliance. Methods: A service evaluation with a standardised questionnaire was completed to assess quality of life and explore factors that have an impact on the preference for which ACE stopper was used. Results: In total, 17 patients completed the evaluation of all three ACE stopper devices. At least 75% of the children improved their stooling pattern with an overall satisfaction rate of 8.5 out of 10. More patients preferred a flexible stopper but no one device was strongly preferred over the others. Conclusion: The study shows that an ACE has a positive impact on quality of life. With regards to the choice of ACE stopper, results show that different stoppers suit different individuals, highlighting that there is a place for a choice. This is useful information for healthcare providers who wish to improve compliance and reduce the risk of complications in this patient group.