Encouraging adolescents' participation during paediatric diabetes clinic visits: Design and development of a question prompt list intervention. (August 2022)

• Record Type: Journal Article
• Authors: Pembroke, Sinead; Cody, Declan; Roche, Edna F; Sleath, Betsy; Hilliard, Carol; Brenner, Maria; Coyne, Imelda
• Is Part Of: Diabetes research and clinical practice. Volume 190(2022)
• Publication Date: 2022-08
• Subjects: Adolescents -- Patient-Healthcare Provider communication -- Type 1 diabetes -- Self-advocacy -- Intervention; Diabetes -- Periodicals; Diabetes Mellitus -- Periodicals; 616.462
• DOI: 10.1016/j.diabres.2022.109985
• Languages: English
• ISSNs: 0168-8227

Abstract

Highlights: Reason for disengagement with HCP is from a negative experience during consultation. Low self-confidence, lack of education and forgetfulness also lead to disengagement. Adolescents felt QPL could help confidence and participation in clinics. Parents and HCPs assumed adolescents had more knowledge of diabetes than in reality. This was an iterative design process led by adolescents with type 1 diabetes. Abstract: Aims: To investigate adolescents' communication with healthcare providers (HCPs) and co– design a question prompt list as one part of an intervention to increase patient participation and communication at diabetes clinic visits. Methods: Using an adolescent-led co-design approach we conducted interviews and focus groups with adolescents, parents, and healthcare providers (HCPs) and held workshops with both a Youth Advisory Group (YAG) and a Parent Advisory Group (PAG). Results: Adolescents and parents identified challenges categorised into four themes: negative experience communicating with HCPs, lacking patient education leading to disinterest, low self-confidence out of fear of being wrong and forgetting to ask question(s). Adolescents identified that a Question Prompt List (QPL) could help them to ask questions, be more confident and participate more. The design process was an iterative development that engaged all stakeholders. Parents and HCPs assumed adolescents had greater knowledge about diabetes than they had in reality. Conclusions: Divergence in perceptions between adults and adolescents regarding patient knowledge of diabetes care demonstrates the importance of encouraging adolescents to ask the questions that matter to them. The QPL could be a useful means of supporting adolescents to actively participate in clinic encounters with healthcare providers.