Neurorehabilitation for people with disorders of consciousness: an international survey of health-care structures and access to treatment, (Part 1). (7th June 2022)

• Record Type: Journal Article
• Authors: Maurer-Karattup, Petra; Zasler, Nathan; Thibaut, Aurore; Poulsen, Ingrid; Lejeune, Nicolas; Formisano, Rita; Løvstad, Marianne; Hauger, Solveig; Morrissey, Ann-Marie
• Is Part Of: Brain injury. Volume 36:Number 7(2022)
• Page Start: 850
• Page End: 859
• Publication Date: 2022-06-07
• Subjects: Disorders of consciousness -- unresponsive wakefulness syndrome -- minimally conscious state -- brain injury -- neurorehabilitation; Brain damage -- Periodicals; Brain -- Wounds and injuries -- Periodicals; Brain Injuries -- Periodicals; 617.481
• DOI: 10.1080/02699052.2022.2059813
• Languages: English
• ISSNs: 0269-9052

Abstract

ABSTRACT: Aims: The provision of rehabilitation services for people with disorders of consciousness (DoC) may vary due to geographical, financial, and political factors. The extent of this variability and the implementation of treatment standards across countries is unknown. This study explored international neurorehabilitation systems for people with DoC. Methods: An online survey (SurveyMonkey®) was disseminated to all members of the International Brain Injury Association (IBIA) DoC Special Interest Group (SIG) examining existing rehabilitation systems and access to them. Results: Respondents (n = 35) were from 14 countries. Specialized neurorehabilitation was available with varying degrees of access and duration. Commencement of specialized neurorehabilitation averaged 3–4 weeks for traumatic brain injury (TBI) and 5–8 weeks for non-traumatic brain injury (nTBI) etiologies. Length of stay in inpatient rehabilitation was 1–3 months for TBI and 4–6 months for nTBI. There were major differences in access to services and funding across countries. The majority of respondents felt there were not enough resources in place to provide appropriate neurorehabilitation. Conclusions: There exists inter-country differences for DoC neurorehabilitation after severe acquired brain injury. Further work is needed to implement DoC treatment standards at an international level.