A Survivorship Educational Tool for Latino Adolescent and Young Adult Cancer Survivors. Issue 5 (September 2022)

• Record Type: Journal Article
• Authors: Casillas, Jacqueline N.; Bolano, Carl; Schwartz, Lindsay F.; Ganz, Patricia A.; Kahn, Katherine; Stuber, Margaret; Bastani, Roshan; Morales, Sonia; Macadangdang, Joshua; Lidington, Emma K.; Quintana, Karla; Gonzalez, Amri; Casas, Esther; Barboa, Elvia
• Is Part Of: Health promotion practice. Volume 23:Issue 5(2022)
• Page Start: 861
• Page End: 873
• Publication Date: 2022-09
• Subjects: community-partnered participatory research -- cancer survivorship care -- photonovela -- Latino -- adolescent and young adult; Health promotion -- Periodicals; Health promotion -- United States -- Periodicals; Health education -- Periodicals; Health education -- United States -- Periodicals; 613
• DOI: 10.1177/15248399211061709
• Languages: English
• ISSNs: 1524-8399

Abstract

Background: Low receipt of survivorship care by Latino adolescent and young adult (AYA) cancer survivors necessitates development of age-appropriate and culturally tailored interventions aimed at increasing their perceived need for survivorship care. Method: This study describes the development and acceptability testing of a culturally tailored intervention, a photonovela, as part of a community-partnered participatory research (CPPR) project. A four-step approach to the photonovela's development was implemented: (a) literature review, (b) RAND-modified Delphi method, (c) photonovela booklet development, and (d) photonovela acceptability testing through focus groups. Using the CPPR approach, community and academic experts and members worked together at all stages of this project to identify educational domains for the photonovela and ensure that community views and scientific knowledge were equally represented. Results: Cancer survivors and their families described the photonovela as entertaining and relatable. Its story positively reflected their own experiences, and they connected strongly with its characters. Acceptability testing of the photonovela played a significant role in its final script and content, and provided additional new insights into understanding survivorship care perspectives for Latino AYA survivors and their families. Conclusion: Equal and shared community and academic involvement through CPPR is essential in identifying unique needs and developing culturally acceptable educational interventions for Latino AYA cancer survivors. The photonovela was seen as an important educational resource in enhancing knowledge and increasing perceived need for survivorship care in this population.