More than words: Parent, Patient and Public Involvement perspectives on language used by clinical researchers in neonatal care. (August 2022)

• Record Type: Journal Article
• Authors: Moss, Becky; Lammons, William; Johnson, Samantha; Ribas, Ricardo; Uthaya, Sabita; Battersby, Cheryl; Cornelius, Victoria; Babalis, Daphne; Modi, Neena
• Is Part Of: Early human development. Volume 171(2022)
• Publication Date: 2022-08
• Subjects: Parent Public Involvement -- Neonatal -- Language -- Qualitative; Fetus -- Periodicals; Neonatology -- Periodicals; Prenatal influences -- Periodicals; 612.65
• DOI: 10.1016/j.earlhumdev.2022.105611
• Languages: English
• ISSNs: 0378-3782

Abstract

Abstract: In this qualitative study exploring parent views of information about research studies, we found they accepted uncertainty as justification, and that three key aspects of language - words, tone, and pace - influence parents' decision about their baby's inclusion. We recommend parents are routinely involved in developing information materials. Highlights: Parents accept uncertainty as an integral component of clinical care. Language, format and structure of patient information sheets influence consent. Three key aspects of language which influenced parents were words, tone, and pace.