'We want to be parents like everybody else': stories of parents with learning disabilities. (27th May 2018)

• Record Type: Journal Article
• Authors: Theodore, Kate; Foulds, Daniel; Wilshaw, Paul; Colborne, Alison; Lee, Joyce Nga Yu; Mallaghan, Lisa; Cooper, Mary; Skelton, Julia
• Is Part Of: International journal of developmental disabilities. Volume 64:Number 3(2018)
• Page Start: 184
• Page End: 194
• Publication Date: 2018-05-27
• Subjects: parents with intellectual disabilities -- parents with learning disabilities -- qualitative research -- thematic analysis -- inclusive research; People with mental disabilities -- Periodicals; People with mental disabilities -- Care -- Periodicals; Mental retardation -- Periodicals; 362.1968
• DOI: 10.1080/20473869.2018.1448233
• Languages: English
• ISSNs: 2047-3869

Abstract

Abstract : Objectives: This project represents a unique collaboration between creative and research processes using an inclusive qualitative methodology. Method: Semi-structured interviews with five mothers and three fathers with learning disabilities were led by learning disabled researchers, and thematic analysis conducted with input from people with learning disabilities. Results: Five main themes are presented; (1) subjective experiences of becoming parents, (2) perceptions that other people assume people with learning disabilities are incompetent parents, resulting in a need to prove worthiness, (3) experiences of services, (4) overcoming 'knock-backs' and (5) support for the rights of other parents. An additional subgroup analysis is presented: fathers feel 'left out'. Conclusion: Parents felt criticized by others, who they felt questioned their competence as parents unfairly by comparison to those without learning disabilities. The collaboration between academic research and an inclusive theater group allowed dissemination of parents' stories to wider public, and professional, audiences through creative performances.