"Well in in this neighborhood I have walked, not at all": Stroke survivors lived experience in the outdoor environment. (July 2022)

• Record Type: Journal Article
• Authors: Twardzik, Erica; Colabianchi, Natalie; Duncan, Lilia; Lisabeth, Lynda D.; Brown, Susan H.; Clarke, Philippa J.
• Is Part Of: Social science & medicine. Volume 305(2022)
• Publication Date: 2022-07
• Subjects: Stroke -- Outdoor environment -- Participation; Social medicine -- Periodicals; Medical anthropology -- Periodicals; Public health -- Periodicals; Psychology -- Periodicals; Medicine -- Periodicals; Medicine -- Periodicals; Médecine sociale -- Périodiques; Anthropologie médicale -- Périodiques; Santé publique -- Périodiques; Psychologie -- Périodiques; Médecine -- Périodiques; Electronic journals; 362.105
• DOI: 10.1016/j.socscimed.2022.115107
• Languages: English
• ISSNs: 0277-9536

Abstract

Abstract: Stroke survivors face unique challenges in the outdoor environment when returning to their home community following a stroke. Challenges include navigating uneven terrain, social stigma, and adapting to changes in functioning. Outdoor environments may serve as potential points of intervention to promote independence and participation post stroke. This study aimed to understand lived post-stroke experience in the outdoor environment as it pertains to independent mobility. Methods: Qualitative semi-structured interviews were conducted with 20 stroke survivors (8 males, 12 females; mean age 64.2 years: range 45 years–90 years). Participants were eligible if they were over the age of 45, could communicate in English, lived outside a nursing home, able to walk safely outdoors, were a minimum of six-months post stroke, and had no severe cognitive impairment. Interviews with participants were tape recorded, audio files were transcribed verbatim, codes were created and applied to transcripts, and themes were generated using interpretative phenomenological analysis. Results: Post-stroke experiences in the outdoor environment were multidimensional. Three themes emerged from the stroke survivors' description of personal experiences in the outdoor environment. These themes included feelings of vigilance, employing adaptation strategies, and management of dynamic relations between the self and context. Discussion: The findings highlight the post-stroke experience traversing the outdoor environment. Investing in the public outdoor environment to remove barriers and install facilitators could reduce feelings of apprehension and hypervigilance while walking in the outdoor environment. Future research is needed to evaluate the role of environmental interventions on hypervigilance in the outdoor environment post stroke. Highlights: Functioning and environment shift post-stroke perceptions of safety and vigilance. Individual and environmental adaptation supported outdoor mobility post-stroke. Outdoor experiences are dynamic and shaped by personal and environmental factors. Stroke survivors manage changes in the environment to engage in outdoor mobility.