Public education materials about Vascular Composite Allotransplantation and donation in the United States: Current scope and limitations. Issue 11 (5th October 2020)

• Record Type: Journal Article
• Authors: Van Pilsum Rasmussen, Sarah E.; Uriarte, Jefferson; Anderson, Naomi; Doby, Brianna; Ferzola, Alexander; Sung, Hannah; Cooney, Carisa; Brandacher, Gerald; Gordon, Elisa; Segev, Dorry L.; Henderson, Macey L.
• Is Part Of: Clinical transplantation. Volume 34:Issue 11(2020)
• Page Start: n/a
• Page End: n/a
• Publication Date: 2020-10-05
• Subjects: content analysis -- education -- reconstructive transplantation -- vascular composite allograft -- Vascular Composite Allotransplantation; Transplantation of organs, tissues, etc -- Periodicals; 617.95
• DOI: 10.1111/ctr.14066
• Languages: English
• ISSNs: 0902-0063

Abstract

Abstract: As the field of Vascular Composite Allotransplantation (VCA) grows, demand for VCA donations will increase. The public should be made aware of this treatment option to support patients' informed decision‐making and authorization for deceased donation. We assessed the availability and quality of existing VCA public education materials from organ procurement organizations (OPOs), transplant centers, the Organ Procurement and Transplant Network, Veterans Affairs, and the Department of Defense. A content analysis was performed to identify topics covered and important gaps. In total, 1314 public education materials were analyzed, including OPO Facebook posts (61.6%), OPO Twitter posts (29.9%), websites (6.4%), and written documents (eg, fact sheets, research reports) (2.1%). Upper extremity (34.7%) and face (34.5%) transplants were more commonly covered than reproductive (6.4%) or other VCA types (2.8%). Most materials (76.6%) referenced a specific VCA story. However, few materials described which patient population could benefit from VCA (eg, Veterans, amputees, burn victims, 16.4%), the authorization requirements for VCA donation (6.6%), or the appearance of transplanted VCA organs (1.2%). Current VCA public education materials do not adequately educate the public. More comprehensive education materials are needed to prepare the public to authorize VCA donation, become potential donors, or learn about transplant options.