Transmission dynamics: Data sharing in the COVID‐19 era. Issue 1 (28th June 2020)

• Record Type: Journal Article
• Authors: Foraker, Randi E.; Lai, Albert M.; Kannampallil, Thomas G.; Woeltje, Keith F.; Trolard, Anne M.; Payne, Philip R. O.
• Is Part Of: Learning health systems. Volume 5:Issue 1(2021)
• Page Start: n/a
• Page End: n/a
• Publication Date: 2020-06-28
• Subjects: collaboration -- data sharing -- healthcare delivery -- population health; Medical care -- Research -- Periodicals; Medical informatics -- Periodicals; Health planning -- Periodicals; 362.1068
• DOI: 10.1002/lrh2.10235
• Languages: English
• ISSNs: 2379-6146

Abstract

Abstract: Problem: The current coronavirus disease 2019 (COVID‐19) pandemic underscores the need for building and sustaining public health data infrastructure to support a rapid local, regional, national, and international response. Despite a historical context of public health crises, data sharing agreements and transactional standards do not uniformly exist between institutions which hamper a foundational infrastructure to meet data sharing and integration needs for the advancement of public health. Approach: There is a growing need to apply population health knowledge with technological solutions to data transfer, integration, and reasoning, to improve health in a broader learning health system ecosystem. To achieve this, data must be combined from healthcare provider organizations, public health departments, and other settings. Public health entities are in a unique position to consume these data, however, most do not yet have the infrastructure required to integrate data sources and apply computable knowledge to combat this pandemic. Outcomes: Herein, we describe lessons learned and a framework to address these needs, which focus on: (a) identifying and filling technology "gaps"; (b) pursuing collaborative design of data sharing requirements and transmission mechanisms; (c) facilitating cross‐domain discussions involving legal and research compliance; and (d) establishing or participating in multi‐institutional convening or coordinating activities. Next steps: While by no means a comprehensive evaluation of such issues, we envision that many of our experiences are universal. We hope those elucidated can serve as the catalyst for a robust community‐wide dialogue on what steps can and should be taken to ensure that our regional and national health care systems can truly learn, in a rapid manner, so as to respond to this and future emergent public health crises.