Experiences of non‐invasive prenatal screening: A survey study. (27th September 2021)

• Record Type: Journal Article
• Authors: Cornell, Paige; Armstrong, Taylah; Fyfe, Rina; Mallise, Carly A.; Dudding‐Byth, Tracy; Campbell, Linda E.
• Is Part Of: Australian and New Zealand journal of obstetrics and gynaecology. Volume 62:Number 2(2022)
• Page Start: 241
• Page End: 249
• Publication Date: 2021-09-27
• Subjects: genetic testing -- non‐invasive prenatal testing -- genetic counselling -- decision making -- pregnancy; Obstetrics -- Periodicals; Gynecology -- Periodicals; 618.05
• DOI: 10.1111/ajo.13436
• Languages: English
• ISSNs: 0004-8666

Abstract

Abstract : Background: In Australia, using non‐invasive prenatal testing (NIPT) to screen for fetal abnormalities is becoming more commonplace. However, there is a lack of standardised procedures surrounding pre‐test counselling. This holds the potential for variability in pregnant people's experiences when undergoing NIPT, which subsequently may impact their ability to make informed decisions surrounding NIPT results. Aim: This study sought to characterise the experiences of Australian women undergoing NIPT, including perceptions of informed choice, counselling experiences and decision to undergo NIPT. Materials and Methods: Australian women who had been recently pregnant ( n = 94) completed an online survey which assessed: their knowledge of and attitude toward NIPT; satisfaction with counselling; satisfaction with their decision; and decisional conflict to undergo NIPT. The survey also allowed participants to provide qualitative information about their counselling experience and reasons for undergoing NIPT. Results: Overall, participants had good knowledge of and positive attitudes toward NIPT, experienced low decisional conflict and were overall satisfied with their counselling experience and decision to undergo NIPT. However, some participants expressed dissatisfaction with the lack of information provided, and biased language, by counselling providers. The desire to be informed was the most frequent reason for undergoing NIPT. Conclusion: The provision of accurate and objective information in pre‐test counselling is important to reduce decisional conflict and improve satisfaction with the decision to undergo NIPT. It is recommended counselling providers present pregnant people with neutral, objective, and accurate information at the time of pre‐test counselling.