Developing and using a structured, conversation-based intervention for clarifying values and preferences for end-of-life in the advance care planning-naïve Swedish context: Action research within the DöBra research program. Issue 4 (21st April 2022)

• Record Type: Journal Article
• Authors: Tishelman, Carol; Eneslätt, Malin; Menkin, Elizabeth; Lindqvist, Olav
• Is Part Of: Death studies. Volume 46:Issue 4(2022)
• Page Start: 803
• Page End: 815
• Publication Date: 2022-04-21
• Subjects: Death -- Psychological aspects -- Periodicals; Terminal care -- Periodicals; Death -- Moral and ethical aspects -- Periodicals; 306.9
• DOI: 10.1080/07481187.2019.1701145
• Languages: English
• ISSNs: 0748-1187

Abstract

Abstract: Sweden has no systematic advance care planning (ACP), nor legal recognition of end-of-life proxies. We describe our experiences and reflections from a participatory action research process, aiming at developing and initially using a conversation-based, structured ACP approach among community-dwelling, older adults in Sweden. Eco-mapping and DöBra cards were used with 65 people to catalyze discussions on preferences for the end-of-life. We found great individual variation in both Eco-map depictions of social networks and prioritization of the 37 DöBra card items. The DöBra cards were concluded to be a viable tool for stimulating person-centered conversations on preferences for future end-of-life care.