The Ups and Downs of Parenting Young Children With Type 1 Diabetes: A Crowdsourcing Study. (22nd March 2017)

• Record Type: Journal Article
• Authors: Pierce, Jessica S.; Aroian, Karen; Caldwell, Cindy; Ross, Judith L.; Lee, Joyce M.; Schifano, Elizabeth; Novotny, Rebecca; Tamayo, Anthony; Wysocki, Tim
• Is Part Of: Journal of pediatric psychology. Volume 42:Number 8(2017)
• Page Start: 846
• Page End: 860
• Publication Date: 2017-03-22
• Subjects: crowdsourcing -- parental coping -- social support -- type 1 diabetes -- young children; Clinical child psychology -- Periodicals; 618.9289005
• DOI: 10.1093/jpepsy/jsx056
• Languages: English
• ISSNs: 0146-8693

Abstract

Abstract: Objectives: Parenting young children with type 1 diabetes (YC-T1D) entails pervasive challenges; parental coping may influence child and parent outcomes. This study used a qualitative descriptive design to describe these challenges comprehensively to inform the user-centered design of an Internet coping resource for parents. Methods: A "Parent Crowd" of 153 parents of children with T1D onset at ≤ 5 years old submitted textual responses online to open-ended questions about parenting YC-T1D. Systematic coding organized responses into domains, themes, and examples. A supplemental focus group of racial/ethnic minority parents enhanced the sample's diversity and validated findings from the Parent Crowd. Results: Similar domains and themes emerged from responses of crowdsourcing and focus group participants. In each domain, parenting YC-T1D was challenging, but there was also substantial evidence of positive coping strategies and adaptability. Conclusions: The study yielded rich data to inform user-centered design of an Internet resource for parents of YC-T1D.