A learning health network for pediatric liver transplantation: Inaugural meeting report from the Starzl Network for Excellence in Pediatric Transplantation. (22nd July 2019)

• Record Type: Journal Article
• Authors: Squires, James E.; Logan, Beth; Lorts, Angela; Haskell, Henrisa; Sisaithong, Kristen; Pillari, Tony; Szolna, Jonathan; Dodd, Darcy; Gonzalez‐Peralta, Regino P.; Hsu, Evelyn; Kelly, Beau; Kosmach‐Park, Beverly; Lobritto, Steven; Ng, Vicky L.; Perito, Emily; Rasmussen, Sara; Romero, Rene; Shemesh, Eyal; Karolak, Hannah; Mazariegos, George V.
• Is Part Of: Pediatric transplantation. Volume 23:Number 6(2019)
• Page Start: n/a
• Page End: n/a
• Publication Date: 2019-07-22
• Subjects: children -- learning health system -- liver transplantation -- quality improvement; Transplantation of organs, tissues, etc. in children -- Periodicals; 617.95408305
• DOI: 10.1111/petr.13528
• Languages: English
• ISSNs: 1397-3142

Abstract

Abstract: Learning Health Networks (LHN) improve the well‐being of populations by aligning clinical care specialists, technology experts, patients and patient advocates, and other thought leaders for continuous improvement and seamless care delivery. A novel LHN focused on pediatric transplantation, the Starzl Network for Excellence in Pediatric Transplantation (SNEPT), convened its inaugural meeting in September 2018. Clinical care team representatives, patients, and patient families/advocates partnered to take part in educational sessions, pain point exercises, and project identification workshops. Participants discussed the global impact of transplant from both a population and individual perspective, identifying challenges and opportunities where the Starzl Network could work to improve outcomes at scale across a variety of transplant‐related conditions.