PARE0002 Adherence to therapy and patients engagement in italy: a close link. (12th June 2018)

• Record Type: Journal Article
• Authors: Viora, U.G.; Broggini, R.; Campolieti, G.; Leonardi, F.; Padovani, F.; Tonolo, S.
• Is Part Of: Annals of the rheumatic diseases. Volume 77(2018)Supplement 2
• Page Start: 1872
• Page End: 1872
• Publication Date: 2018-06-12
• Subjects: Rheumatism -- Periodicals; 616.723005
• DOI: 10.1136/annrheumdis-2018-eular.6865
• Languages: English
• ISSNs: 0003-4967

Abstract

Abstract : Background: In the last years ANMAR Italia and the federated Regiional Association worked hardly to educate people with Rheumatic diseases (RMDs) to an appropriate adherence to the therapy prescribed, as the Mosaico project confirmed that even patients in bio-technological therapies reveal unwillingness to assume their drugs within the schedule prescribed by the rheumatologist (timing and doses). "ANMAR we care", study by the Italian Association of patients with Rheumatic diseases (ANMAR) in 2017 thnaks to an unrestricted grant from ABBVIE and the precious collaboration of the Engage Minds Hub Research Center of Università Cattolica del Sacro Cuore di Milano directed by prof. Guendalina Graffigna, intended to analize the problem again after the campains acted in the last two years and to link adherence to theapies with the degree of patient engagement. Objectives: to verify the percentage of adherent patients and their degree of adhesion to the therapy. To appraise the relationship among adherence and engagement of people with rheumatic diseases. Methods: in the study we administered to patients a specifically pursued questionnaire containing a fair number of questions on adherence to therapies. This sub-analysis was made using the answers to those questions and data have been interpolated with those related to the level of engagement of the patients. Results: overall data confirm that in Italy also in 2017 the percentage of people with RMDs adherent to therapies settles in dissatisfying degrees (54%) and that such includes patients partially adherent. Looking at the relationship within adherence and engagement, if divided in the four groups anticipated by the PHE Model the percentage are: Blackout (cognitive blindness, deny, freezing) 47%, Arousal (superficial knowledge, alert, behavioral disorganization) 46%, Adhesion (cognitive adhesion, accep-tance, formal adherence) 61%, Eudaimonic Project (sense making, elaboration, situated practices) 78%. Notice that patients with Psoriatic Arthritis are the most adherent, followed by those with Fibromialgy, Spondylitis and finally with Rheumatoid Arthritis. Conclusions: this analysis highlights that the information and awareness campaigns made in the last years were useful, but results are still far away from the optimum. As we expected, the engagement degree hardly affects the adherence process, but totally unexpected is that patients in "Arousal" are more confused and less adherent than those in "Blackout". Disclosure of Interest: None declared