AB1406-HPR DIET AND LUPUS: WHAT DO THE PATIENTS THINK?. (June 2019)

• Record Type: Journal Article
• Authors: Robinson, George; Mcdonnell, Thomas; Wincup, Chris; Martin-Gutierrez, Lucia; Wilton, James; Kalea, Anastasia; Ciurtin, Coziana; Torra, Ines Pineda; Jury, Elizabeth; Lab, Jury; Lab, Jury; Lab, Jury
• Is Part Of: Annals of the rheumatic diseases. Volume 78(2019)Supplement 2
• Page Start: 2166
• Page End: 2166
• Publication Date: 2019-06
• Subjects: Rheumatism -- Periodicals; 616.723005
• DOI: 10.1136/annrheumdis-2019-eular.5669
• Languages: English
• ISSNs: 0003-4967

Abstract

Abstract : Background: Cardiovascular disease (CVD) is the leading cause of mortality in patients with systemic lupus erythematosus (lupus). Therefore, using diet to control blood lipid levels and modify CVD risk could be a promising therapeutic strategy to control disease symptoms. Objectives: The primary objective of this study was to learn about lupus patient experiences with diet including their opinion on considering diet as a therapeutic option. The secondary objective was to obtain this information in a cost and time effective manner. Methods: A lay summary and a 15 question diet-based online survey was publicly available for 3 weeks. Social media was used to promote the survey through relevant charities, hospitals and research groups. Results: 300 responses were received, 284 of whom had lupus. Patients reported that there was a lack of clinical counselling regarding diet with only 24% of patients stating that their doctor had spoken to them about diet. Despite this, 100% of patients stated that they would change their diet if they knew it would help their symptoms and 83% would take part in a future diet-based clinical trial. Text analysis of patient research suggestions identified a particular interest in using diet to treat fatigue and manage disease flares. Conclusion: This project successfully gathered patient information regarding diet and lupus over a short timeframe using an anonymous social media platform. The survey provided evidence that patients support further research and potential diet intervention studies investigating the effect of diet on the symptoms of lupus. References: [1] Bernatsky S, Boivin JF, Joseph L, Manzi S, Ginzler E, Gladman DD, et al. Mortality in systemic lupus erythematosus. Arthritis & Rheumatism. 2006;54(8):2550-7. [2] McDonnell TCR, Wincup C, Rahman A, Giles I. Going viral in rheumatology: a rapid, cost-effective method of obtaining patient opinion about mechanistic research in SLE and APSA. Rheumatology. 2018;57:1. Acknowledgement: Lupus UK, Rosetrees Trust, Versus Arthritis, Survey Monkey Disclosure of Interests: None declared