Narrative medicine: feasibility of a digital narrative diary application in oncology. Issue 2 (February 2022)

• Record Type: Journal Article
• Authors: Cercato, Maria Cecilia; Colella, Elvira; Fabi, Alessandra; Bertazzi, Isabella; Giardina, Barbara Giuseppa; Di Ridolfi, Paolo; Mondati, Mara; Petitti, Patrizia; Bigiarini, Liciano; Scarinci, Virginia; Franceschini, Alessandro; Servoli, Francesca; Terrenato, Irene; Cognetti, Francesco; Sanguineti, Giuseppe; Cenci, Cristina
• Is Part Of: Journal of international medical research. Volume 50:Issue 2(2022)
• Publication Date: 2022-02
• Subjects: Narrative-based medicine -- digital diary -- digital narrative medicine -- personalized medicine -- personalized care -- chemotherapy -- radiotherapy; Medicine -- Periodicals; Pharmacology -- Periodicals; 610.5
• DOI: 10.1177/03000605211045507
• Languages: English
• ISSNs: 0300-0605

Abstract

Objectives: We implemented narrative medicine in clinical practice using the Digital Narrative Medicine (DNM) platform. Methods: We conducted a preliminary, open, uncontrolled, real-life study in the oncology and radiotherapy departments of Istituto di Ricovero e Cura a Carattere Scientifico National Cancer Institute Regina Elena, Rome, Italy. We recruited adult Italian-speaking patients who then completed the DNM diary from the start of treatment. The primary endpoint was DNM feasibility; secondary endpoints were health care professionals' opinions about communication, therapeutic alliance, and information collection and patients' opinions about therapeutic alliance, awareness, and coping ability. We used open- and closed-ended questions (scores 1 to 5) and a structured interview. Results: Thirty-one patients (67%) used the diary (84% women). Health care professionals' mean scores for feasibility and utility were ≥4.0. Patients' utility scores were related to health care professionals' feedback regarding the narratives. The main advantages for health care professionals were the opportunity to obtain relevant patient data and to strengthen communication and patient relationships (mean scores 4.4–5.0). Both groups strongly encouraged introduction of the diary in clinical practice. Conclusion: Use of the DNM in oncology patients assisted clinicians with understanding their patients experience.