Shortening patient-reported outcome measures through optimal test assembly: application to the Social Appearance Anxiety Scale in the Scleroderma Patient-centered Intervention Network Cohort. Issue 2 (22nd February 2019)

• Record Type: Journal Article
• Authors: Harel, Daphna; Mills, Sarah D; Kwakkenbos, Linda; Carrier, Marie-Eve; Nielsen, Karen; Portales, Alexandra; Bartlett, Susan J; Malcarne, Vanessa L; Thombs, Brett D
• Other Names: author non-byline.; Baron Murray author non-byline.; Furst Daniel E author non-byline.; Gottesman Karen author non-byline.; Mayes Maureen D author non-byline.; Mouthon Luc author non-byline.; Nielson Warren R author non-byline.; Riggs Robert author non-byline.; Sauve Maureen author non-byline.; Wigley Fredrick author non-byline.; Assassi Shervin author non-byline.; Boutron Isabelle author non-byline.; Maia Angela Costa author non-byline.; El-Baalbaki Ghassan author non-byline.; Ells Carolyn author non-byline.; den Ende Cornelia van author non-byline.; Fligelstone Kim author non-byline.; Fortune Catherine author non-byline.; Frech Tracy author non-byline.; Godard Dominique author non-byline.; Hudson Marie author non-byline.; Impens Ann author non-byline.; Jang Yeona author non-byline.; Johnson Sindhu R author non-byline.; Kennedy Ann Tyrell author non-byline.; Körner Annett author non-byline.; Larche Maggie author non-byline.; Leite Catarina author non-byline.; Marra Carlo author non-byline.; Pope Janet author non-byline.; Rodriguez Reyna Tatiana Sofia author non-byline.; Schouffoer Anne A author non-byline.; Steele Russell J author non-byline.; Suarez-Almazor Maria E author non-byline.; Welling Joep author non-byline.; Wong-Rieger Durhane author non-byline.; Agard Christian author non-byline.; Albert Alexandra author non-byline.; André Marc author non-byline.; Arsenault Guylaine author non-byline.; Benmostefa Nouria author non-byline.; Benzidia Ilham author non-byline.; Berthier Sabine author non-byline.; Bissonnette Lyne author non-byline.; Boire Gilles author non-byline.; Bruns Alessandra author non-byline.; Carreira Patricia author non-byline.; Casadevall Marion author non-byline.; Chaigne Benjamin author non-byline.; Chung Lorinda author non-byline.; Cohen Pascal author non-byline.; Dagenais Pierre author non-byline.; Denton Christopher author non-byline.; Domsic Robyn author non-byline.; Dubois Sandrine author non-byline.; Dunne James V author non-byline.; Dunogue Bertrand author non-byline.; Esquinca Alexia author non-byline.; Fare Regina author non-byline.; Farge-bancel Dominique author non-byline.; Fortin Paul R author non-byline.; Gill Anna author non-byline.; Gordon Jessica author non-byline.; Granel-Rey Brigitte author non-byline.; Grange Claire author non-byline.; Gyger Genevieve author non-byline.; Hachulla Eric author non-byline.; Hatron Pierre-Yves author non-byline.; Herrick Ariane L author non-byline.; Hij Adrian author non-byline.; Hinchcliff Monique author non-byline.; Ikic Alena author non-byline.; Jones Niall author non-byline.; de D Fernandes Artur Jose author non-byline.; Kafaja Suzanne author non-byline.; Khalidi Nader author non-byline.; Korman Benjamin author non-byline.; Lambert Marc author non-byline.; Launay David author non-byline.; Liang Patrick author non-byline.; London Jonathan author non-byline.; Luna David author non-byline.; Maillard Hélène author non-byline.; Manning Joanne author non-byline.; Martin Maria author non-byline.; Martin Thierry author non-byline.; Masetto Ariel author non-byline.; Maurier François author non-byline.; Mekinian Arsene author non-byline.; Melchor Sheila author non-byline.; Nikpour Mandana author non-byline.; Paule Romain author non-byline.; Proudman Susanna author non-byline.; Régent Alexis author non-byline.; Rivière Sébastien author non-byline.; Robinson David author non-byline.; Rodriguez Esther author non-byline.; Roux Sophie author non-byline.; Smets Perrine author non-byline.; Smith Doug author non-byline.; Sobanski Vincent author non-byline.; Spiera Robert author non-byline.; Steen Virginia author non-byline.; Stevens Wendy author non-byline.; Sutton Evelyn author non-byline.; Terrier Benjamin author non-byline.; Thorne Carter author non-byline.; Varga John author non-byline.; Wilcox Pearce author non-byline.; Wilson Michelle author non-byline.; Cumin Julie author non-byline.; Fox Rina S author non-byline.; Gholizadeh Shadi author non-byline.; Jewett Lisa R author non-byline.; Levis Brooke author non-byline.; Pepin Mia R author non-byline.; Turner Kimberly A author non-byline.;
• Is Part Of: BMJ open. Volume 9:Issue 2(2019)
• Publication Date: 2019-02-22
• Subjects: patient reported outcome measure -- optimal test assembly -- short form -- generalized partial credit model -- systemic sclerosis; Medicine -- Research -- Periodicals; 610.72
• DOI: 10.1136/bmjopen-2018-024010
• Languages: English
• ISSNs: 2044-6055

Abstract

Abstract : Objectives: The Social Appearance Anxiety Scale (SAAS) is a 16-item measure that assesses social anxiety in situations where appearance is evaluated. The objective was to use optimal test assembly (OTA) methods to develop and validate a short-form SAAS based on objective and reproducible criteria. Design: This study was a cross-sectional analysis of baseline data from adults enrolled in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort. Setting: Adults in the SPIN Cohort in the present study were enrolled at 28 centres in Canada, the USA and the UK. Participants: The SAAS was administered to 926 adults with scleroderma. Primary and secondary measures: The SAAS, Brief Fear of Negative Evaluation II (BFNE II), Brief Satisfaction with Appearance Scale (Brief-SWAP), Patient Health Questionnaire-8 (PHQ8) and Social Interaction Anxiety Scale-6 (SIAS-6) were collected, as well as demographic characteristics. Results: OTA methods identified a maximally informative shortened version for each possible form length between 1 and 15 items. The final shortened version was selected based on prespecified criteria for reliability, concurrent validity and statistically equivalent convergent validity with the BFNE II scale. A five-item short version was selected (SAAS-5). The SAAS-5 had a Cronbach's α of 0.95 and had high concurrent validity with the full-length form (r=0.97). The correlation of the SAAS-5 with the BFNE II was 0.66, which was statistically equivalent to that of the full-length form. Furthermore, the correlation of the SAAS-5 with the two subscales of the Brief-SWAP, and the SIAS-6, were statistically equivalent to that of the full-length form. Conclusions: OTA was an efficient method for shortening the full-length SAAS to create the SAAS-5.