Barriers and facilitators to the availability of efficacious self-directed digital health tools for adults living with cancer and their caregivers: A systematic literature review and author survey study. Issue 10 (October 2021)

• Record Type: Journal Article
• Authors: Bamgboje-Ayodele, Adeola; Smith, Allan 'Ben'; Short, Camille E.; Fardell, Joanna E.; Shaw, Joanne; Beatty, Lisa; Higgins, Kristen; Tutelman, Perri R.; Chambers, Christine T.; Girgis, Afaf
• Is Part Of: Patient education and counseling. Volume 104:Issue 10(2021)
• Page Start: 2480
• Page End: 2489
• Publication Date: 2021-10
• Subjects: Digital health -- Cancer -- Self-management -- User-centred design -- Implementation science; Patient education -- Periodicals; Health counseling -- Periodicals; Health education -- Periodicals; Counseling -- Periodicals; Patient Education -- Periodicals; Éducation des patients -- Périodiques; Counseling -- Périodiques; Éducation sanitaire -- Périodiques; 615.5071
• DOI: 10.1016/j.pec.2021.03.012
• Languages: English
• ISSNs: 0738-3991

Abstract

Abstract: Objective: This study aimed to examine barriers and facilitators to the dissemination of efficacious self-directed digital health tools for adults affected by cancer, and quantify funding used to develop and evaluate these digital health tools. Methods: We conducted: (1) a systematic literature review to identify efficacious self-directed digital health tools for adults affected by cancer, published between 2009 and 2019 and (2) an author survey to identify barriers and facilitators to dissemination of those tools, grant funding and the user centredness of their design (UCD) process. Results: Of 1314 screened articles, 29 articles describing 26 tools met the inclusion criteria. From 26 surveys sent, 12 were completed, 6 of which described disseminated tools. Whilst researchers' motivation and infrastructure support facilitate tool dissemination, limited funds, lack of infrastructure and limited research timelines are the most common barriers. A median of AUD$250, 000 was spent on tools not disseminated to end-users. Conclusion: Although incorporating UCD processes in the development of digital health tools is important, it is imperative to integrate implementation processes into the planning stages of tool development to ensure dissemination. Practice Implications: Researchers, academic institutions, funding agencies and government and non-government organisations all have roles to play to support long-term implementation. Highlights: Most effective digital health tools for adults affected by cancer are not disseminated. Researchers' motivation and supportive infrastructure facilitate tool dissemination. Limited funds and timeline and lack of infrastructure are the most common barriers. Early integration of implementation processes into tool development aids dissemination.